I keep thinking about how this new routine will not be routine for long. June is going to fly by and then here come July. No “camp” in July so we will have to create a new routine to keep us busy. When Owen got off the bus he immediately started talking about going to school the next day and pretty much continued to talk about it all night. He likes his teacher and seems to be making progress at school. He was sleepy when he went to bed tonight but still, it took him almost three hours to fall asleep. Well, fall asleep the final time. I’ve tried early to bed, late to bed, and everything in between and it is different every single night. He kept falling asleep and then he would jet straight up from his sleeping position, again hearing every noise in our house. The wind blows and the house makes a noise, and he is awoken. I try not to overthink it but I wish I could create a soundproof room for him, one day. Even the light shadows play a part in his sleeping. His room is brown with blackout curtains. He sleeps with a tent canopy over his bed and that still doesn’t seem to be calm enough. We went to one of our therapy sessions tonight. It didn’t go according to plan. He expects to have everything go in the order he wants it to. And it is not easy for him to comprehend when it doesn’t. I try to explain to him that sometimes we have to wait our turn but truly what does our turn even mean. He’ll yell out “we have to wait our turn” but when he is saying it he is generally already heading towards a meltdown. Plus, right now with everything being topsy turvy the not having his routine plays a bigger role in moments like these. When we left he wanted to get “chicken nuggets french fries apple juice cheeseburger and a toy” changing it up a little but with his words. He ate most of it when we got home, only leaving a few bites of his cheeseburger. He knows what the rest of his schedule will be for the week but trying to explain to him that he gets his glasses on Friday has not gone over well yet. “No glasses today”, he says. I think this is mostly because he needs to keep to the routine and places he understands for his schedule. I’m hopeful that once he realizes he can see better with the glasses that he will want to wear them. One day at a time I remind myself, praying a lot and knowing that we truly do have to take it one day at a time. He has so many things to process right now that it is hard for him to comprehend them all. We laughed a lot tonight in between the struggles and I know we both needed it. Find your inspiration and let the joy seep into your heart. Smiles to all and donut daze!
I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.