He was happy his day was going to be exactly as he wanted it, but he still didn’t believe it even after hours of trying to convince him. At some point, you give up on sleep. You don’t know tired until you know autism momma tired. I finally told him he could have his tablet if he went back to bed. His version of back to bed and mine are completely different. He would come out of his room every few minutes to say his teacher’s name repeatedly loud enough in the question form before going back to his room. The cycle repeated, and I finally gave up on trying to sleep.
He did not know that his grandma was picking us up to take him to school and me to my appointments. I had two appointments, and they were at two different buildings across the street from each other. Since I walk slower than a snail carrying molasses, it was wonderful for the door to door service since my appointments were so close together. We got Owen to school, and we headed off to the cancer center.
My appointments went quickly, and I came home for a little while before I picked Owen up for his music therapy. I had warned his teacher that he had been up for most of the night making sure he was going to see her, so I wasn’t sure if he would be extra tired. When I picked him up, she said he had the giggles and thought everything was funny. He didn’t want to give any of the right answers even though he knew them, and I knew exactly what she meant.
His music therapist said he was pretty laid back and let the other student decide most of the things they would do. On the way home, he told me many times he wanted to go by the “bridge flags.” He kept repeating it, so I told him if he said it one more time, I wouldn’t take him. He didn’t say it again. That felt like a victory.
His vision therapy appointment went pretty much how it has been going. He was excited to be there, yelled numerous times, mostly did the exercises with a little extra support, and talked about wanting the doctor to chew gum and wear specific shoes. He cried when he got in the car to leave his doctor, though, and he was ready to go back the next week already.
“You know the answer,” he said to me when we got home. This had not been one of his responses for a little while now, so much so that I almost forgot it was a thing. He was very calm for the rest of the night. He would occasionally say his teacher’s name, wanting me to confirm that he would see her tomorrow. I, of course, couldn’t do this since we are possibly having snow tomorrow, but I confirmed anyway. At this point, there is a two-hour delay.
Sleep happened quickly, but the key will be if it stays all night. He was exhausted and fell asleep as soon as he stayed in bed. That took a couple of tries. I’m thankful for his amazing laugh and his great smile. The story for tomorrow is not writing. Let it be about kindness and grace. Smiles to all and donut daze!