Owen had told me he was going to sleep until “six oh oh” but he only slept until a little after five. I’ll take it. Stomach issues are a thing of the past, thankfully. It must have been something he ate. The mission was stated. Church, grandma’s house, and “mommy go bye bye.” I told him that we would have to wait and see. He told me to see. Besides wanting to get his day started he was very calm.
The morning was full of lots of questions about the week ahead. “What the weather going to be like I will big tell you,” he said. I’m still wondering why the “big tell you” has become part of his vocabulary but here we are. I try to remind him that we are in winter and that means the weather can change constantly. This morning a snow squall pushed through our area but thankfully it did not come near us. I warned him though. It doesn’t always sit well with him but I am trying to prepare him for that our schedule can change in an instant. Wise or not wise depends on the day, emotions, and what it will affect. Going to church and grandma’s house are not things he wants to weather to be a part of this
Our friend met us at church. She had other plans this afternoon but wanted to come to church with us. Owen was so happy to have her with us. It was good that she met us there because it was a change to our normal routine. Routine is great until routine gets interrupted and these interruptions are exactly what he needs to be prepared for. Life happens when you have something else planned and that is about the only thing that is one hundred percent routine. Change is hard but not learning about change is even harder. And I have to remember that.
I reminded him on the way to grandma’s house that I was staying to wish my dad a happy birthday when I dropped him off and he said, “Then mommy go bye bye.” He was sad because he didn’t get to go yesterday but I told him that mommy was glad he wasn’t sick and got to go today. That whole change thing was heavy on his mind. He is getting a little better about me going inside with him but he truly wants grandma time without me. It is something he has to prepare for like when we come for dinner or the holidays.
We got to my parents’ house and we went inside. I stayed for a little while and then I left so Owen could spend time with his grandma. I told him that I was coming back for him and he wouldn’t come out to the car. Again trying to change it up a little bit so he can learn to adapt to changes quicker. He came out exactly when I got there. He did it perfectly but the ride home was a little more on the bumpy side. His anxiousness for the days ahead played over and over and over as the night wore on.
He wanted me to tell him if he was going to have all his therapies this week. I tried to explain to him that yes he is supposed to have them all but he relived what seemed like every therapy he has missed for one reason or another. He then moved on to whether his friend would be there for camp, Halloween, and if they would go to school together. For a brief moment, I got him off this path and then he started telling me he was going to invite all his people to the trunk or treat at his therapy place.
The train was not derailed for long. We then entered the pouring chocolate all over ourselves portion of the day. Why is this now a thing? He immediately was upset because he got chocolate milk on his “little blue jeans” and he “was soaking wet.” I told him that if he kept pouring milk on himself he would not be able to have his “little blue jeans” back because they would be ruined. I’m truly not sure why he wants to do this now.
The night concluded with him still very anxious about his days ahead. I couldn’t help ease his mind or convince him that I didn’t know what was going to happen with the weather. My heart hurts with the complexity of how hard this can be for him. My mind never rests because his mind is full of all the constantly moving parts that he wants answers to. I pray and I pray some more for answers, guidance, and strength for both of us. My hope is in watching him doing his breathing exercises to take “little deep breaths calm down” and knowing that the foundation is being built and it will get stronger every day. His smile is golden and his laughter is life. The rain is going to fall but the sunshine will come. The bright spots are coming. Smiles to all and donut daze!
The morning was full of lots of questions about the week ahead. “What the weather going to be like I will big tell you,” he said. I’m still wondering why the “big tell you” has become part of his vocabulary but here we are. I try to remind him that we are in winter and that means the weather can change constantly. This morning a snow squall pushed through our area but thankfully it did not come near us. I warned him though. It doesn’t always sit well with him but I am trying to prepare him for that our schedule can change in an instant. Wise or not wise depends on the day, emotions, and what it will affect. Going to church and grandma’s house are not things he wants to weather to be a part of this
Our friend met us at church. She had other plans this afternoon but wanted to come to church with us. Owen was so happy to have her with us. It was good that she met us there because it was a change to our normal routine. Routine is great until routine gets interrupted and these interruptions are exactly what he needs to be prepared for. Life happens when you have something else planned and that is about the only thing that is one hundred percent routine. Change is hard but not learning about change is even harder. And I have to remember that.
I reminded him on the way to grandma’s house that I was staying to wish my dad a happy birthday when I dropped him off and he said, “Then mommy go bye bye.” He was sad because he didn’t get to go yesterday but I told him that mommy was glad he wasn’t sick and got to go today. That whole change thing was heavy on his mind. He is getting a little better about me going inside with him but he truly wants grandma time without me. It is something he has to prepare for like when we come for dinner or the holidays.
We got to my parents’ house and we went inside. I stayed for a little while and then I left so Owen could spend time with his grandma. I told him that I was coming back for him and he wouldn’t come out to the car. Again trying to change it up a little bit so he can learn to adapt to changes quicker. He came out exactly when I got there. He did it perfectly but the ride home was a little more on the bumpy side. His anxiousness for the days ahead played over and over and over as the night wore on.
He wanted me to tell him if he was going to have all his therapies this week. I tried to explain to him that yes he is supposed to have them all but he relived what seemed like every therapy he has missed for one reason or another. He then moved on to whether his friend would be there for camp, Halloween, and if they would go to school together. For a brief moment, I got him off this path and then he started telling me he was going to invite all his people to the trunk or treat at his therapy place.
The train was not derailed for long. We then entered the pouring chocolate all over ourselves portion of the day. Why is this now a thing? He immediately was upset because he got chocolate milk on his “little blue jeans” and he “was soaking wet.” I told him that if he kept pouring milk on himself he would not be able to have his “little blue jeans” back because they would be ruined. I’m truly not sure why he wants to do this now.
The night concluded with him still very anxious about his days ahead. I couldn’t help ease his mind or convince him that I didn’t know what was going to happen with the weather. My heart hurts with the complexity of how hard this can be for him. My mind never rests because his mind is full of all the constantly moving parts that he wants answers to. I pray and I pray some more for answers, guidance, and strength for both of us. My hope is in watching him doing his breathing exercises to take “little deep breaths calm down” and knowing that the foundation is being built and it will get stronger every day. His smile is golden and his laughter is life. The rain is going to fall but the sunshine will come. The bright spots are coming. Smiles to all and donut daze!
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