Sweet Baby O - Our Autism Journey
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Building Monday - our autism journey

7/15/2024

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One bathroom is one bathroom too few when every single noise is a noise. Some nights I can be quiet as a mouse and make it to the bathroom without waking Owen and sometimes if I don’t say anything when he starts talking he will go back to sleep. Last night was not that night. Two o’clock in the morning was the wake-up time and that was that.

No matter how hard I tried there was no convincing him to go back to sleep and the more agitated he got the more concerned he became about it being summer break. Two o’clock in the morning is truly not a great time to have a discussion that will affect the rest of your day. He wanted to know who he was going to see in August and he wanted to know if it would still be summer break tomorrow. He knows the answers as much as I do but he can’t process it. And the more I explain the more it gets us in circles.

Tired doesn’t cover how I feel today and having Owen on edge about all his days ahead is hard. It is probably the hardest day we have had all summer. He has been so calm lately that days like this are a reminder of how far we have come. My emotions sit on my sleeve and I want him to understand that I don’t always have the answers and the answers I do have can change. I can only imagine how hard all this is on him. He goes to school with his people every weekday for so long and then months of nothing. Not to mention when people move to new schools or change jobs. I try to explain it all to him but on days where he gets very little sleep, it is truly hard.

All morning long he asked about his summer break and knew what he was doing each day. We got ready for his music therapy and off we went. The whole ride there he wanted to know when his grandma was going to pick him up tomorrow. I’m thankful his music therapist knows how to handle it all. She is incredible with Owen and even though he was elevated he was able to tell me what they did in his session.

I got lunch for us and he was very talkative about all the things he wanted. I am thankful that he likes a wide variety of food. He ate it all when we got home and felt much calmer than he had been all morning. I prayed he would be that way when we went to his vision therapy.

As the day wore on I finally figured out why he was even more elevated because tomorrow is the 16th. He kept asking all day if tomorrow was summer break. It didn’t dawn on me until he was asking about tomorrow that it was the same date as when he goes back to school so I showed him the calendar which he let me do without closing it or screaming. Once he confirmed that he was going to see you tomorrow and it was still July and not going to be August 16th he was much calmer.

He was excited to go to his vision therapy appointment. Even though he was still elevated he at least was calmer than he had been earlier in the day. He wanted to take his robot to show his doctor and both she and her intern were happy that he wanted to share. He did most of the exercises and was happy to be there.

We got home and he was still asking about the days ahead but much calmer. I’m thankful for this and I pray that after tomorrow goes by he will make the connection he still has a month to go. We will be very busy over the next month so hopefully that will help. Even though today was long and one of the most challenging we’ve had in a while I’m thankful for his growth. Greet each day with a new attitude and make it the best day ever. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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