I woke a little after four but I wasn’t sick and I only woke once to go to the bathroom. I was asleep somewhere after nine so I feel very thankful for that. Owen slept until well after six. His music therapy was cancelled today so I was able to explain that to him before he went to school. I asked him if he still wanted me to pick him up or if he wanted to ride the bus home. He told me he wanted to ride the bus home and started jumping up and down.
We got ready for the bus. He started talking about what his vision doctor would be wearing today. He knew she would be in scrubs but it was still very concerning for him. He was anxious about it but I tried to calm him down before school. Thankfully he switched to talking about the bus and we went outside to wait. Thankfully they were earlier today and off to school he went.
He came home and once again his focus changed to his vision doctor. I knew it was upsetting to him but I explained that it would still be blue but now scrubs like his other doctors wore. He was not sure that he wanted to go but I told him that we had to give her kindness and grace and let her wear what she needed to wear for her job. It was hard for him at first when we got there to even go in but she met us at the door and he was able to have his session. It was hard for him but thankfully he was able to finish his exercises and by the end, he was much calmer. He told his doctor about his teacher and the aide. He said he liked them. I am once again reminded and thankful for the support and love my son gets from so many people. On the way home he told me he wanted to eat fish and look at blue pants. It sounded like a full night for us.
He is very focused on what his teacher will be doing this summer. It is hard for him to understand when he can’t have everything set in stone and all the choices he wants. I try to explain to him that he just started his school year and it will be a long time until summer school but he wants his schedule in order. I wish he could go to school year-round.
Some days are emotional for me. Most days are emotional, truly. The hardest part is the hardest part and then we move forward or try to. Each day I think about how far he has come and what his future holds. I see great things and I know that he will move mountains with his smile and change the world with his heart. Today is the first day of the rest of your life. Let today start your new story. Smiles to all and donut daze!