Some days can be emotional and today was one of them for Owen. I thankfully only woke up one time last night and he slept until after six. He was very calm at first but he then got very elevated.
Today was chemo infusion day so I always wear camo clothing on appointment days. He generally has no problem with my camo pants but today as soon as I put them on he started screaming for me to change into blue pants. I talked to him about choices and he had wanted to wear shorts so I told him mommy always wears camo on medicine box days. I told him it makes mommy happy. He couldn’t get past it. I tried numerous ways but he wasn’t happy. I didn’t change but I told him I would wear blue pants tomorrow.
After we settled on that he moved to talking about wanting to make sure his teacher was also going to be his summer school teacher. I have tried to explain that there is no way I could know yet. I’m not sure if she does summer school and I think they have to wait to see where they end up when it is closer to summer. Either way, it isn’t something I know yet but I kept telling him yes because he kept screaming.
There must have been something wrong with his bus so they were on a different bus this morning. I couldn’t see when they were getting to our house on the app so between him being so upset and not seeing it on the app we were coming down our steps right as they were arriving. He was so upset though he only wanted to talk to me about summer school the bus driver and aide both were so kind and helped get him on the bus. I know that he is always in great hands and I’m pretty sure he sits with the bus aide almost every day.
I let his teacher know that he was highly elevated but I was sure once he saw her that it would help calm him. I am so thankful he has formed a bond with his teacher and the aide already. This has been such a great experience for him and I am amazed at how quickly he is making these huge strides. Routine is everything and knowing his schedule means so much to him. His teacher is constantly working at preparing him for what comes next and that means so much to both of us.
We are still having some warm days but our mornings have been cool. I am trying to prepare him for the change back into wearing pants. He only wanted to wear blue jeans for so long and then decided one day he wanted to wear shorts. Winter is one of those things that he needs to wear pants but when it is an emotional journey with clothing this is all going to be a battle for him to overcome. I told him that we could try different pants again that are like long shorts but he says only “blue pants.” I’m still going to try but my main focus is keeping the meltdowns at bay.
My mom picked him up from school to take him to therapy while I was at my chemo infusion. My mom told me he did excellent at therapy today for both his sessions and his one therapist wore all blue today so I know that calmed him down. I am very thankful for her wearing that and I know that it helped him to have great sessions today. I am so thankful for all the love he gets from so many people.
We came home and he did amazing all night. He was very calm and reminded me again to remember to grow green and red ponytails when the medicine was over. I told him I would do the best I could. Nighttime came quickly and he didn’t want to go at first but it didn’t take long and he was out of I’m thankful he recovered from his meltdowns in the morning and he had a great day. Dream big and follow your heart. You can do anything you set your mind to. Smiles to all and donut daze!
Today was chemo infusion day so I always wear camo clothing on appointment days. He generally has no problem with my camo pants but today as soon as I put them on he started screaming for me to change into blue pants. I talked to him about choices and he had wanted to wear shorts so I told him mommy always wears camo on medicine box days. I told him it makes mommy happy. He couldn’t get past it. I tried numerous ways but he wasn’t happy. I didn’t change but I told him I would wear blue pants tomorrow.
After we settled on that he moved to talking about wanting to make sure his teacher was also going to be his summer school teacher. I have tried to explain that there is no way I could know yet. I’m not sure if she does summer school and I think they have to wait to see where they end up when it is closer to summer. Either way, it isn’t something I know yet but I kept telling him yes because he kept screaming.
There must have been something wrong with his bus so they were on a different bus this morning. I couldn’t see when they were getting to our house on the app so between him being so upset and not seeing it on the app we were coming down our steps right as they were arriving. He was so upset though he only wanted to talk to me about summer school the bus driver and aide both were so kind and helped get him on the bus. I know that he is always in great hands and I’m pretty sure he sits with the bus aide almost every day.
I let his teacher know that he was highly elevated but I was sure once he saw her that it would help calm him. I am so thankful he has formed a bond with his teacher and the aide already. This has been such a great experience for him and I am amazed at how quickly he is making these huge strides. Routine is everything and knowing his schedule means so much to him. His teacher is constantly working at preparing him for what comes next and that means so much to both of us.
We are still having some warm days but our mornings have been cool. I am trying to prepare him for the change back into wearing pants. He only wanted to wear blue jeans for so long and then decided one day he wanted to wear shorts. Winter is one of those things that he needs to wear pants but when it is an emotional journey with clothing this is all going to be a battle for him to overcome. I told him that we could try different pants again that are like long shorts but he says only “blue pants.” I’m still going to try but my main focus is keeping the meltdowns at bay.
My mom picked him up from school to take him to therapy while I was at my chemo infusion. My mom told me he did excellent at therapy today for both his sessions and his one therapist wore all blue today so I know that calmed him down. I am very thankful for her wearing that and I know that it helped him to have great sessions today. I am so thankful for all the love he gets from so many people.
We came home and he did amazing all night. He was very calm and reminded me again to remember to grow green and red ponytails when the medicine was over. I told him I would do the best I could. Nighttime came quickly and he didn’t want to go at first but it didn’t take long and he was out of I’m thankful he recovered from his meltdowns in the morning and he had a great day. Dream big and follow your heart. You can do anything you set your mind to. Smiles to all and donut daze!
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