Owen slept all night and I mostly did. He was quite proud of himself and asked how to say he “slept all night” instead of saying “not upper night.” I told him that he could say that he “slept all night.” He started repeating it as he ran off to get his tablet.
He was asking about what date Friday was even though he knew. I told him next Saturday would be March first and then I asked him if he knew what the 14th was and he said, “My birthday go to big slides.” I reminded him the big slides were closed but we would find something fun to do for his birthday.
He was very ready for church and for the week ahead. He had a good morning but was very focused on what was going to happen for the days ahead and when my hair was going to grow out. He had told me he wanted to go see the fish after church but I had a feeling that would probably change.
He was very happy to be at church. I took him to the requested Burger King afterward and he was excited. I didn’t get him a burger because he never eats them he asked where it was and I said why didn’t I get you a burger. He replied I don’t like their burgers. He ate the nuggets and fries. He ended up not wanting to see the fish just to get food.
He is supposed to have a well check on Tuesday and a dentist checkup on Wednesday but I’m going to see if I can reschedule them. I feel that as much as he likes to go to both it will be harder on him because he needs a full week of his exact schedule.
He was on major repeat mode about going to school tomorrow. He did not stop asking for his teacher since we got home from church. And if he wasn’t asking for his teacher he was yelling about my hair and needing to wear bunny ears. My heart hurts for how much being off routine is hard on him and my hair has rocked his world.
I told him I could no longer think from all the yelling and he just kept coming to me repeating everything over and over again. When I am tired I cannot think to distract him even though that is the only way to remotely get him to stop. He repeated “high school” 67 times once I started counting. I missed at least a full minute or two of him saying it before I started counting. Then he said “High school in two more years” at least fifteen times because I didn’t say anything. All a few inches from my nose. Generally, if I try to ignore him it gets faster with the repetition and either same tone or screaming by the time he is done with a complete meltdown.
I know he is anxious about going because his schedule has been disrupted so many times. Weather and sickness are beyond my control but he doesn’t get it. After repeating his teacher’s name for hours he told me I needed a hug and to be kind to everyone.
I keep hearing so many therapists say how far he has come because of how I have done things with him but I can’t break this cycle and nobody has any solutions. It breaks my heart that he gets stuck in these moments and no matter what I say he can’t stop it. I wish I had answers. I have taken him to so many doctors, psychiatrists, and therapists, and still no answers. He is beyond brilliant and he can break through all the rules and ways to try to stop these behaviors. Plus, when I’m tired I cannot stop the moving train because I have to be on my A-game to help him process it and without hair, he has a hard time listening to me.
I know he is over the top today too because of the weather and all the changes over the last few weeks. These past two weeks have changed our lives for the next few months. He will be on edge until he has enough good routine days to make himself feel secure in his routine.
I pray for sleep tonight and that we can have a full week of routine. He was awake until after ten, worried about seeing his teacher. He finally went to bed and all I can do is pray. He told me to laugh a lot today and I sure tried. His laughter is the best. Never give up on the hope for tomorrow. Smiles to all and donut daze!
He was asking about what date Friday was even though he knew. I told him next Saturday would be March first and then I asked him if he knew what the 14th was and he said, “My birthday go to big slides.” I reminded him the big slides were closed but we would find something fun to do for his birthday.
He was very ready for church and for the week ahead. He had a good morning but was very focused on what was going to happen for the days ahead and when my hair was going to grow out. He had told me he wanted to go see the fish after church but I had a feeling that would probably change.
He was very happy to be at church. I took him to the requested Burger King afterward and he was excited. I didn’t get him a burger because he never eats them he asked where it was and I said why didn’t I get you a burger. He replied I don’t like their burgers. He ate the nuggets and fries. He ended up not wanting to see the fish just to get food.
He is supposed to have a well check on Tuesday and a dentist checkup on Wednesday but I’m going to see if I can reschedule them. I feel that as much as he likes to go to both it will be harder on him because he needs a full week of his exact schedule.
He was on major repeat mode about going to school tomorrow. He did not stop asking for his teacher since we got home from church. And if he wasn’t asking for his teacher he was yelling about my hair and needing to wear bunny ears. My heart hurts for how much being off routine is hard on him and my hair has rocked his world.
I told him I could no longer think from all the yelling and he just kept coming to me repeating everything over and over again. When I am tired I cannot think to distract him even though that is the only way to remotely get him to stop. He repeated “high school” 67 times once I started counting. I missed at least a full minute or two of him saying it before I started counting. Then he said “High school in two more years” at least fifteen times because I didn’t say anything. All a few inches from my nose. Generally, if I try to ignore him it gets faster with the repetition and either same tone or screaming by the time he is done with a complete meltdown.
I know he is anxious about going because his schedule has been disrupted so many times. Weather and sickness are beyond my control but he doesn’t get it. After repeating his teacher’s name for hours he told me I needed a hug and to be kind to everyone.
I keep hearing so many therapists say how far he has come because of how I have done things with him but I can’t break this cycle and nobody has any solutions. It breaks my heart that he gets stuck in these moments and no matter what I say he can’t stop it. I wish I had answers. I have taken him to so many doctors, psychiatrists, and therapists, and still no answers. He is beyond brilliant and he can break through all the rules and ways to try to stop these behaviors. Plus, when I’m tired I cannot stop the moving train because I have to be on my A-game to help him process it and without hair, he has a hard time listening to me.
I know he is over the top today too because of the weather and all the changes over the last few weeks. These past two weeks have changed our lives for the next few months. He will be on edge until he has enough good routine days to make himself feel secure in his routine.
I pray for sleep tonight and that we can have a full week of routine. He was awake until after ten, worried about seeing his teacher. He finally went to bed and all I can do is pray. He told me to laugh a lot today and I sure tried. His laughter is the best. Never give up on the hope for tomorrow. Smiles to all and donut daze!
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