My sleep was all over the map last night but thankfully once again Owen slept beautifully and woke in an awesome mood. I am always glad when he wakes up and is ready for a great day.
He talked about his day ahead while he ate his first breakfast of cereal and chocolate milk. He is taking to the new plan of assigned days for people in blue. That makes me happy but the real test will be how he handles it when he sees the people not in blue. So far it is at least keeping him thinking about the possibility that they are wearing it on their assigned days so it isn’t as bad for him. The test will be coming up over the next week and we will pivot when needed.
When we went out to wait for the bus our neighbor came over to offer help getting Owen on the bus if we needed help. It was very kind of her but he was on a mission to get across the street and wait for his bus. She didn’t understand that she was causing him to have a meltdown because he just needed to get across the street and wait. There is no way she could possibly understand but it was truly upsetting Owen. I thanked her but tried to explain right now I just needed to get him across the street. She isn’t someone he knows very well but it was very kind of her to ask. It is also hard because the bus arrives at different times so I always wait until the bus is close before we go outside. He got on the bus and was making sure about his schedule with the bus and making sure I wasn’t using an umbrella.
Today was chemo infusion day for me. It is a day I look forward to. I can’t control anything that day so I have to relax. And I know it is getting me one step closer to the cure. I was happy to hear the doctor say my labs were good and I got my potassium up to a great level. The day went fast and I was very thankful for their smiling faces at the therapy and I had great company.
Owen went to therapy with his grandma. She picked him up from school and took him. He only had occupational therapy but his therapist said he had a good day. He went home with grandma for a bit and then we met them to pick up Owen and then went home. I was thankful for my friend who helped us today on our journey.
We ate our dinner and Owen laughed and laughed and laughed. Everything was funny to him today and it makes my heart happy to hear him laugh. I’m excited to see his growth and how far he has come. Never give up on the hope for tomorrow. It is a beautiful day to start living your best life. Smiles to all and donut daze!
He talked about his day ahead while he ate his first breakfast of cereal and chocolate milk. He is taking to the new plan of assigned days for people in blue. That makes me happy but the real test will be how he handles it when he sees the people not in blue. So far it is at least keeping him thinking about the possibility that they are wearing it on their assigned days so it isn’t as bad for him. The test will be coming up over the next week and we will pivot when needed.
When we went out to wait for the bus our neighbor came over to offer help getting Owen on the bus if we needed help. It was very kind of her but he was on a mission to get across the street and wait for his bus. She didn’t understand that she was causing him to have a meltdown because he just needed to get across the street and wait. There is no way she could possibly understand but it was truly upsetting Owen. I thanked her but tried to explain right now I just needed to get him across the street. She isn’t someone he knows very well but it was very kind of her to ask. It is also hard because the bus arrives at different times so I always wait until the bus is close before we go outside. He got on the bus and was making sure about his schedule with the bus and making sure I wasn’t using an umbrella.
Today was chemo infusion day for me. It is a day I look forward to. I can’t control anything that day so I have to relax. And I know it is getting me one step closer to the cure. I was happy to hear the doctor say my labs were good and I got my potassium up to a great level. The day went fast and I was very thankful for their smiling faces at the therapy and I had great company.
Owen went to therapy with his grandma. She picked him up from school and took him. He only had occupational therapy but his therapist said he had a good day. He went home with grandma for a bit and then we met them to pick up Owen and then went home. I was thankful for my friend who helped us today on our journey.
We ate our dinner and Owen laughed and laughed and laughed. Everything was funny to him today and it makes my heart happy to hear him laugh. I’m excited to see his growth and how far he has come. Never give up on the hope for tomorrow. It is a beautiful day to start living your best life. Smiles to all and donut daze!
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