Sweet Baby O - Our Autism Journey
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Creating Thursday - our autism journey

7/25/2024

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I slept until about four and Owen came to me at least an hour later. I was thankful he woke up happy and calm. He came and gave me a big hug. He knew that he was going to grandma’s and I was getting medicine for my “medicine box.”

Since I started this cancer journey I wanted to make sure Owen could understand it as much as possible. When I knew I was going to get a port put in I started explaining to him what it was. The best way I could explain it to him was needing to be gentle with me because of the “medicine box” which is the name I gave the port. I figured he would be able to handle that name because understood about needing medicine. Now he gives me gentle hugs.

My hair is still a big issue for Owen but I’m going to try and get another haircut again soon. I talk to him a lot about it and want him to understand that he can get his haircut short too if he likes. I told him it would grow back but mommy is trying something new. I want him to be a part of the journey in every way he can so he will understand it in a way that helps him with the connections.

We got ready and we met his grandma. He was going to stay with her and my friend was going to take me to the cancer clinic and stay with me. I was thankful Owen would be with my mom and that would help him remain calm. He went to his therapy later in the day with her and it went well.

My day was pretty much an all-day event. Lots of medicine pumping through my veins. I’m thankful for an incredible team that just keeps growing. I had a great nurse today and he helped me with all the steps. As soon as he looked at my port I knew it was going to be a great day. he said woah this looks great. You could tell in his excitement it was healing nicely. He talked about how well it was healing and all was going well with it. This made me extremely happy.

Throughout the day bag after bag was changed and he was very precise on what he was telling me. They have this down to a science and I’m thankful for everyone on the journey with me. They have tons of volunteers who bring arts and crafts around to work on with us and a snack tray that came as often as we wanted something. Truly for what was happening, I could not have asked for a better day.

We picked Owen and my friend brought us home. He was very calm for the rest of the night. I was so thankful he had a good day. We played some songs and we ate dinner. It was a nice night. I asked him if he remembered where I was today and he said getting medicine. I am glad that he is making these connections.

Bedtime was not something he welcomed but was asleep quickly. He has an appointment for us to go to and then he said he did and also said he did not want to go to lunch with Grandma so we will see. Cherish the memories and make many more. Let bygones be bygones and make your moments grow. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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