The dude announced as he came out of his room he “slept upper night” and he “slept past six oh oh and seven oh oh gets to go to Bible Center Church” always saying “center” as “centel” with an L sound. “It is daytime,” he proclaimed. “Get to wear little blue jeans,” he went on. Plus that means he is getting really good at reading the clock since he told me exactly when he got up at “seven oh two.” I was so happy.
It was “get ready for church time” and he had put one of his “designer blue jeans” back into the bins. He wants all the ones he has already worn to be cleaned because those are his favorites so it is still a lot of discussion but at least he wasn’t upset like he was without the bins. He mostly put his own clothes on but I still had to help him with the buckle.
Finding a middle ground of moving forward is more work some days than others and can be very emotional. He wanted to show me and talk about all the things that are behaviors he doesn’t even do but he sure does love the attention it gets when he tries to do any of the activities associated with it.
He was so happy to be at church. I’m beyond thankful for our people. He talked about our people all the way home peppered with snow talk and how it would affect his week. He knows it might snow and how this might throw us off. He told me he would change his Monday plans to Tuesday if that happens. I told him it’s not quite how it works so we will see. At this point, it isn’t supposed to stick but you never know how it will change overnight.
“The Internet taking a nap,” he said when we got home. Every time we come home he always asks me before we even get out of the car if the “internet is working.” I try to explain to him that it takes a few minutes to connect and I can’t tell him the instant we pull up to the house if it is working. I explain that most likely it is but I won’t know right away. Thankfully most days it is and it wasn’t even taking a nap.
I showed him how the weather app worked. I went into details hoping that it would help him and he would start looking at it to see what the weather would be like. It looked like it was almost going to snow when we were leaving church. He asked me lots of questions about the weather as the night went on but I told him it didn’t look like it was going to be bad.
The rocky road with many behaviors started as the afternoon went on. He wanted to show me all the things he knows he shouldn’t but I told him his tablet would go bye-bye because he was being “bump loud” and smiling while showing me everything. I was not feeling my best this afternoon and he knew what buttons to push. I told him that if he kept it up he would not be going to our friend’s house on Tuesday. He started being kinder and told me he was sorry.
He sang many songs for me. I’m working with him on how to play his ukulele more by pressing his fingers on the strings. I know he does it a lot with his music therapist so I try to follow through with him using both hands. He rushes through a lot of the songs. I am working with him to slow down and feel the music.
The snow at this point has been downgraded but I still prepared him for it as he went to bed. I’m thankful for how much he has grown and he felt calmer as we talked about the weather. Each day I tell him that he is amazing and I want him to know that he can accomplish anything if he sets his mind to it. Life is precious. Be the change you want to see in the world. Smiles to all and donut daze!
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