Owen went through all the days ahead the minute he woke up. He walked up to me after he went to the bathroom, pulled some of my hair up on each side of my head like Pippi Longstocking, and started telling me that he was seeing his grandma tomorrow, church on Sunday, and school on Monday, adding that he would be going to music therapy and vision therapy. I could tell as his excitement level went up that the important part was that he made sure I knew we were doing nothing today. He went back and forth about doing activities tomorrow before going to see his grandma but then said only grandma. So this means we shall see how all the days ahead go. He stayed right beside me in the “white bed” until it was time to get ready for school. He hadn’t mentioned school when he was going through all his days. I always ask him what about today? He then says, “Focus on today.” At this point, he wanted all the foods, two minutes set on the timer, and to make sure he was going to grandma’s house tomorrow so he could play on her “black computer.” The interesting part is that it isn’t even hooked up to the internet. Ours is and he plays with it a lot but he always wants to play with hers. When we were waiting for the bus I always try to work on conversation skills with him. This is a moment in time when he is completely focused on the bus but I want him to also understand that he can still carry on a conversation while he is doing other activities. I started talking to him about wishing someone a Merry Christmas but before I could get the word “Christmas” out he said, “Mary C Snow.” I didn’t have time to go into any more details about how I was talking about Christmas and not the school he loves that he has never gone to because his bus came around the corner and his excitement began. When he came home from school I thought for a minute I convinced him to go someplace but he wanted to play on his computer. It’s not any faster since I got it working again but at least it is working. He was ready for a bath the minute he came home so he could use his goggles again. I wonder how he would like a pair that goes completely over his eyes. I told him he could take a bath after dinner. He started watching videos of people driving around our area. He was yelling at one driver to make sure they stopped at the burger boy - the statue he loves. I was starting to fix our dinner and was making chicken. He told me no chicken today. He requested waffles. I do believe that’s because I told him he had to wait until after dinner for his bath. Goggles are on his mind and there is no stopping bath time. The quickest route to bath time is a quick dinner that is made quickly. I told him I still had to eat my dinner though so I asked him if he would like chicken and waffles. He once again said, “No chicken today.” The boy was on a mission. He got his bath and he wore his goggles. Bedtime was not quick. Friday nights are our rollercoaster night. He had it on his mind about his day tomorrow and every time I thought he was asleep he would yell out “black computer.” I pray for sleep. I pray for calm. I pray for his understanding. Each day I remind myself to stay strong and keep moving forward. Enjoy the moments that whisper the melody of your life and let it be your guide for a beautiful day. Smiles to all and donut daze!
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