SIX AM! Owen slept until six! I woke up more times than I can count last night for more reasons than I can explain. He was in a great mood and wanted me to know he couldn’t wait to see his best friend at his school in August. He told me he was going to look for his car and he couldn’t wait to eat lunch with him. I love that he was able to share this all with me.
He was also back to plotting his time to see all his people and when he could go with them to Bob Evans. He told me again he wanted to see his doctor because he missed her. This dude loves his people fiercely and it makes my heart happy to know he cares for so many people. All morning long he was talking about his best friend. The smile that washes over his face when he talks about him is amazing.
We did some more exercises working on his fine motor skills and then we got ready for school. Before he left he played his drum. I left it sitting on the couch and he was playing it with the sticks. When he first woke up he went straight for it and played a few before he went to get his tablet. He loves it. We went out to wait for the bus and he talked about seeing his teacher. He did one more check with me to see if I knew who would be his bus aide next school year and then he ran to get on the bus.
Every little thing can be something. When the bus brought him home they came the opposite way they normally come so he was not thrilled. He wanted to go after the bus in his wagon that we don’t have anymore because he was too big for it. He told me he wanted to tell his counselor about the bus going to wrong way. He also asked when he was going to dinner with everyone. His social calendar is interesting. And then he wanted to make sure they hadn’t canceled high school like they did summer school and that his friend would still be going to his school next year. It was a busy first hour of him being home.
My brain can’t process it all sometimes. The phone has always been one of those up and down challenges with him that produces a lot of screaming. Since my cancer diagnosis, I have gotten tons of phone calls and tried to answer them all because of my appointments and doctors calling. I answered a phone call and that sent him through the roof. It took him quite a while to calm down from it.
He asked me to take him to get a pizza and then to Burger King. I said do you want to go and he said, “No.” I had an event that I was supposed to be going to at the cancer center but between him being upset and my stomach I decided not to go. I asked him if he wanted to go meet people to see what he would say. He once again said, “No.” I thought I could take him with me for a few minutes and go but I knew it would be hard to take him at this point. My mom was going to watch him for me but he was not budging about going anywhere.
He was attached at my hip most of the night and sat there holding my hand while he played on his tablet asking me questions. The night stayed pretty quiet after that. I pray tonight is another night that I can say he slept all night or at least I can say I slept most of the night. I’m thankful even on the rollercoastery days that he can now express more of his feelings and his needs. Let your heart be happy and share your joy with the world. Smiles to all and donut daze!
He was also back to plotting his time to see all his people and when he could go with them to Bob Evans. He told me again he wanted to see his doctor because he missed her. This dude loves his people fiercely and it makes my heart happy to know he cares for so many people. All morning long he was talking about his best friend. The smile that washes over his face when he talks about him is amazing.
We did some more exercises working on his fine motor skills and then we got ready for school. Before he left he played his drum. I left it sitting on the couch and he was playing it with the sticks. When he first woke up he went straight for it and played a few before he went to get his tablet. He loves it. We went out to wait for the bus and he talked about seeing his teacher. He did one more check with me to see if I knew who would be his bus aide next school year and then he ran to get on the bus.
Every little thing can be something. When the bus brought him home they came the opposite way they normally come so he was not thrilled. He wanted to go after the bus in his wagon that we don’t have anymore because he was too big for it. He told me he wanted to tell his counselor about the bus going to wrong way. He also asked when he was going to dinner with everyone. His social calendar is interesting. And then he wanted to make sure they hadn’t canceled high school like they did summer school and that his friend would still be going to his school next year. It was a busy first hour of him being home.
My brain can’t process it all sometimes. The phone has always been one of those up and down challenges with him that produces a lot of screaming. Since my cancer diagnosis, I have gotten tons of phone calls and tried to answer them all because of my appointments and doctors calling. I answered a phone call and that sent him through the roof. It took him quite a while to calm down from it.
He asked me to take him to get a pizza and then to Burger King. I said do you want to go and he said, “No.” I had an event that I was supposed to be going to at the cancer center but between him being upset and my stomach I decided not to go. I asked him if he wanted to go meet people to see what he would say. He once again said, “No.” I thought I could take him with me for a few minutes and go but I knew it would be hard to take him at this point. My mom was going to watch him for me but he was not budging about going anywhere.
He was attached at my hip most of the night and sat there holding my hand while he played on his tablet asking me questions. The night stayed pretty quiet after that. I pray tonight is another night that I can say he slept all night or at least I can say I slept most of the night. I’m thankful even on the rollercoastery days that he can now express more of his feelings and his needs. Let your heart be happy and share your joy with the world. Smiles to all and donut daze!
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