When your son goes to bed with church on his mind and God in his heart you know you are blessed. The days can be challenging, the nights not so much anymore, but the moments when you hear your child praying for all his friends a sense of calm washes over you. He did tell God that everyone could wear what they wanted to wear but God knows. I am thankful for Owen’s love of God, family, and his friends.
He woke up at “five oh oh” full of information and questions. He did not want to use his white tablet for very long because he wanted it to be at 100% for church so he played with it for a few minutes and then put it back to be charged. The things he comes up with always amaze me. I’m impressed that he became so aware of how his tablet needs its battery to be at full strength to last him for church.
As the morning wore on he was telling me who he would get to see this week. One sleep and all his dreams will come true. Routine will be back and he can’t wait. He also confirmed that he would be going to the dentist in June and it would be when he was out of school while still being a teenage boy and not an “a dult.” He was very excited about getting ready for church and couldn’t wait to see what everyone was wearing. Once again I thought God knows.
Sometimes the things he says make more sense than what the actual things are like he calls the cats’ food “the cats’ peanuts.” It seems like a great name for their food. He always asks if I'm going to give them more peanuts.
How do you explain to someone that I can’t even explain it to myself that anything can become a focal point that will be a daily part of our life or it could cause meltdowns years from now. There are no words to describe the emotions that we think or feel when life changes every day but is exactly the same and this is how the dots can be connected for him.
He talks about people that are out of his life for one reason or another and they may have been someone that he never even met or an object he saw as we drove by it. He will stare out our window and ask about the lady with a dog on the corner who is never there anymore. It used to cause huge meltdowns because she wasn’t there but now it is only questions. I think he saw her maybe when he was five. He never forgets a thing he doesn’t want to forget.
We got ready for church with one sleep on our minds. He couldn’t wait to get to church to see his people and what they were wearing. He was also hoping the Christmas lights were still up. The trip to church was filled with him telling me to “pay attention” and talking about who he hoped would come to church with him soon. All of this was sprinkled in the continued talk of his big day tomorrow.
Church was great. He was happy the Christmas lights were still up and he got to see his people. The spitting and bleeding talk began on the way home. He never spits so I am not sure why we have to talk about it and his jacket got caught on everything he could wrap it on so that it was bleeding. I feel like I’m an old GPS that keeps trying to redirect the driver and the bleeding won’t stop. Arby’s for the win for lunch but the big question was when we were going back to Diehl’s for lunch.
He was pretty calm as the night moved on but he was asking a lot about everyone that he got to see tomorrow and he didn’t want that to change. He wanted to make sure everyone was going to be where they were supposed to be. I told him that I couldn’t predict the changes that might happen but as far as I know, everyone will be there tomorrow. And that theme continued all night.
Bedtime came and he couldn’t wait to for sleep to happen so he could wake up in the morning get on the bus, get to school, see his people, go to music therapy, come home to eat a snack, go to his vision therapy, order his pizza, and go to bed so he could spend all day at school on Tuesday and Wednesday, and get to do all of that and his therapy on Thursday. We went over his whole week many times and he couldn’t have been happier. I’m thankful he had a great day and he is ready for tomorrow. Live in the happy zone. It’s a great place to be. Smiles to all and donut daze!
Note: If you are new to reading about our journey with autism Owen is not bleeding and nothing he owns is bleeding he just insists that when things get caught they are bleeding. When you ask him about blood and bleeding he knows what it means. Oh, how I wish the bleeding would move on. As much medical stuff as I’ve had all my life it is my least favorite topic especially blood.
He woke up at “five oh oh” full of information and questions. He did not want to use his white tablet for very long because he wanted it to be at 100% for church so he played with it for a few minutes and then put it back to be charged. The things he comes up with always amaze me. I’m impressed that he became so aware of how his tablet needs its battery to be at full strength to last him for church.
As the morning wore on he was telling me who he would get to see this week. One sleep and all his dreams will come true. Routine will be back and he can’t wait. He also confirmed that he would be going to the dentist in June and it would be when he was out of school while still being a teenage boy and not an “a dult.” He was very excited about getting ready for church and couldn’t wait to see what everyone was wearing. Once again I thought God knows.
Sometimes the things he says make more sense than what the actual things are like he calls the cats’ food “the cats’ peanuts.” It seems like a great name for their food. He always asks if I'm going to give them more peanuts.
How do you explain to someone that I can’t even explain it to myself that anything can become a focal point that will be a daily part of our life or it could cause meltdowns years from now. There are no words to describe the emotions that we think or feel when life changes every day but is exactly the same and this is how the dots can be connected for him.
He talks about people that are out of his life for one reason or another and they may have been someone that he never even met or an object he saw as we drove by it. He will stare out our window and ask about the lady with a dog on the corner who is never there anymore. It used to cause huge meltdowns because she wasn’t there but now it is only questions. I think he saw her maybe when he was five. He never forgets a thing he doesn’t want to forget.
We got ready for church with one sleep on our minds. He couldn’t wait to get to church to see his people and what they were wearing. He was also hoping the Christmas lights were still up. The trip to church was filled with him telling me to “pay attention” and talking about who he hoped would come to church with him soon. All of this was sprinkled in the continued talk of his big day tomorrow.
Church was great. He was happy the Christmas lights were still up and he got to see his people. The spitting and bleeding talk began on the way home. He never spits so I am not sure why we have to talk about it and his jacket got caught on everything he could wrap it on so that it was bleeding. I feel like I’m an old GPS that keeps trying to redirect the driver and the bleeding won’t stop. Arby’s for the win for lunch but the big question was when we were going back to Diehl’s for lunch.
He was pretty calm as the night moved on but he was asking a lot about everyone that he got to see tomorrow and he didn’t want that to change. He wanted to make sure everyone was going to be where they were supposed to be. I told him that I couldn’t predict the changes that might happen but as far as I know, everyone will be there tomorrow. And that theme continued all night.
Bedtime came and he couldn’t wait to for sleep to happen so he could wake up in the morning get on the bus, get to school, see his people, go to music therapy, come home to eat a snack, go to his vision therapy, order his pizza, and go to bed so he could spend all day at school on Tuesday and Wednesday, and get to do all of that and his therapy on Thursday. We went over his whole week many times and he couldn’t have been happier. I’m thankful he had a great day and he is ready for tomorrow. Live in the happy zone. It’s a great place to be. Smiles to all and donut daze!
Note: If you are new to reading about our journey with autism Owen is not bleeding and nothing he owns is bleeding he just insists that when things get caught they are bleeding. When you ask him about blood and bleeding he knows what it means. Oh, how I wish the bleeding would move on. As much medical stuff as I’ve had all my life it is my least favorite topic especially blood.
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