Clothes, cabbage, and school were the top contenders for what is happening over the next few days. All of that was closely followed by snow, schedule, and Christmas movies with grandma. I never know what the topics will be but I know that his best friend will be thrown into the mix every time at least once and Owen wants him happy not sad at lunch. By “six oh oh” he was asking me to invite all his people to church and I think they should put him as part of the welcome committee.
“The weather is bad” as he told me so stay home it is. I was not pushing anything with him. Sometimes that is easier to get through our days. He was very content with staying home so I kept it that way. I told him that we may not get to go anywhere over the next few days because of the snow. So far he has been doing fine with it. Now tomorrow when it is “eat all together” with grandma day that might be another story.
“It’s very pants degrees outside freezes cold,” he said. The weather and what we should all be wearing were one of the biggest topics for our day. I went to the bathroom and came out to all of his shorts out of his drawers and on his bins. I asked him what he did and he said that he wanted to wear his red shorts and his orange shorts on Saturday. I asked him why he took them out of his drawers and he said, “It’s shorts degrees weather.” I have a feeling my brother would be laughing about this.
The next adventure was taking all of his games and lining them up on the living room floor. He was so excited about all of them being out. He didn’t want me to play the games with him he just wanted me to go through the process of talking about them with him. We were getting a grocery delivery so I asked him if he could put them back up. Instead, he parted way with them and there most of them sat after he went to bed. I have found that moving things on him does not exactly produce the results one might think. He needs things where he needs them and when you move them then he puts them back. It moves in his time.
The interesting topics continued. We moved on to who will be the aide on his bus in 2030. It is always amazing how far ahead he thinks. He wanted me to know he was still thinking about tomorrow. He said, “Eat together cabbage” in the middle of us talking about who would be with him on the bus. In answering his statement I told him that as long as it doesn’t snow we would go celebrate the new year and before I could finish he said, “black computer black on the black computer.” It is always interesting that he wants to play on it because he wants to see the Windows screen pull up and change the icons for the name but other than that he hardly does anything on it and plays with the laptop instead.
He kept coming to me and wanted to make sure I was happy, then he would put his forehead on my lips and say, “kiss.” He wanted lots of hugs and would take my “hug hand” and put it behind his back to hug him. The key to the hug is that he never processes if you have something in your hands or are doing something else he just knows he wants a hug. And I give it to him.
I noticed yesterday that my hand wasn’t as tingly as it had been and today it was even better than yesterday. It finally dawned on me that it may be feeling better because my port isn’t on those nerves anymore. I’m praying it keeps getting better. Cancer is not only about the cancer. Today was a much better day for me and I slept more last night than I had in quite a while. I almost got five hours of sleep and that felt like a dream. I was able to keep up with Owen’s emotions and he wasn’t able to “pick on mommy.” And he couldn’t wait to tell.
He asked about an hour before his bedtime “to swallow pill.” He always takes his supplements before bedtime. He always says swallow but he chews them. He was ready for bed and I wondered if I would make it to midnight. He asked again if we were going to his grandma’s house and I held up my hand and I told him if he sees this much snow no and if he sees no snow yes. Happy New Year’s! 2026 here we come! I learned a lot from Owen this year and my heart is full with his growth. If we can take one thing into the new year let it be kindness. What an amazing world it would be if that were our foundation. Be brave in the new year because truly you are stronger than you think. Smiles to all and donut daze!
“The weather is bad” as he told me so stay home it is. I was not pushing anything with him. Sometimes that is easier to get through our days. He was very content with staying home so I kept it that way. I told him that we may not get to go anywhere over the next few days because of the snow. So far he has been doing fine with it. Now tomorrow when it is “eat all together” with grandma day that might be another story.
“It’s very pants degrees outside freezes cold,” he said. The weather and what we should all be wearing were one of the biggest topics for our day. I went to the bathroom and came out to all of his shorts out of his drawers and on his bins. I asked him what he did and he said that he wanted to wear his red shorts and his orange shorts on Saturday. I asked him why he took them out of his drawers and he said, “It’s shorts degrees weather.” I have a feeling my brother would be laughing about this.
The next adventure was taking all of his games and lining them up on the living room floor. He was so excited about all of them being out. He didn’t want me to play the games with him he just wanted me to go through the process of talking about them with him. We were getting a grocery delivery so I asked him if he could put them back up. Instead, he parted way with them and there most of them sat after he went to bed. I have found that moving things on him does not exactly produce the results one might think. He needs things where he needs them and when you move them then he puts them back. It moves in his time.
The interesting topics continued. We moved on to who will be the aide on his bus in 2030. It is always amazing how far ahead he thinks. He wanted me to know he was still thinking about tomorrow. He said, “Eat together cabbage” in the middle of us talking about who would be with him on the bus. In answering his statement I told him that as long as it doesn’t snow we would go celebrate the new year and before I could finish he said, “black computer black on the black computer.” It is always interesting that he wants to play on it because he wants to see the Windows screen pull up and change the icons for the name but other than that he hardly does anything on it and plays with the laptop instead.
He kept coming to me and wanted to make sure I was happy, then he would put his forehead on my lips and say, “kiss.” He wanted lots of hugs and would take my “hug hand” and put it behind his back to hug him. The key to the hug is that he never processes if you have something in your hands or are doing something else he just knows he wants a hug. And I give it to him.
I noticed yesterday that my hand wasn’t as tingly as it had been and today it was even better than yesterday. It finally dawned on me that it may be feeling better because my port isn’t on those nerves anymore. I’m praying it keeps getting better. Cancer is not only about the cancer. Today was a much better day for me and I slept more last night than I had in quite a while. I almost got five hours of sleep and that felt like a dream. I was able to keep up with Owen’s emotions and he wasn’t able to “pick on mommy.” And he couldn’t wait to tell.
He asked about an hour before his bedtime “to swallow pill.” He always takes his supplements before bedtime. He always says swallow but he chews them. He was ready for bed and I wondered if I would make it to midnight. He asked again if we were going to his grandma’s house and I held up my hand and I told him if he sees this much snow no and if he sees no snow yes. Happy New Year’s! 2026 here we come! I learned a lot from Owen this year and my heart is full with his growth. If we can take one thing into the new year let it be kindness. What an amazing world it would be if that were our foundation. Be brave in the new year because truly you are stronger than you think. Smiles to all and donut daze!
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