The sleep all night thing is going strong for Owen. I think he is easing right back into his routine and hoping everything falls right into place for the rest of his decades. It looks like it is supposed to be another warmer day and continued good weather for the most part for this week will help to ensure there should be no disruptions to his routine for the week ahead. He was extremely focused on getting out to his bus so his wish was my command this morning.
He was very informative and inquisitive this morning. He pulled up his calendar to 2090 and he said, “Owen be a boy.” The math I had to go through to get this one figured out was way too much way too early but I said he would be an adult. He moved on to 2100 and he asked me if he would be in high school. At this point, I think he is just trying to get a reaction from me because we have discussed when he is going to high school but I proceed with telling him he will be an adult then. He asked me what I would be and I redirected him back to him being an adult. I didn’t want to think about all the things that meant as him being an adult without me.
We went through our morning routine and we got outside for the bus. The pure joy he had when he saw it turn the corner is always a beautiful sight to witness. I always want the drivers and aides to know what a difference they make in our kids’ lives. For Owen, the bus is such a joy and part of the routine that he loves. I am beyond thankful for the care they take of him.
After he left I was off to my surgeon’s for my follow-up appointment. Everything is healing nicely and I now don’t have to go back for six months. It is such a relief to be on this side of the coin. I am so thankful for God's grace and for walking through this journey with me.
When Owen got home he had a lot to say but he was pretty calm. He was ready to stay home and sit. He didn’t say too much about school at first but he had a lot to say about his week ahead. He was ready for his Wednesday so he could get to his Thursday. He wanted to know what his therapists would be wearing and if they would all have their hair up. I know that he is questioning more about people’s hair since mine is no longer long and blonde. He doesn’t ask me as much about when I will have long hair again but I think it has transferred to everyone else.
I’m not quite sure why this has become a full circle moment and we are back to something that has been gone for years but he gets very anxious when he thinks I am putting something in my mouth. He will start yelling “You’re amazing” because he wants me to keep talking to him instead of eating, drinking, or taking my medicine. When he was little he would have huge meltdowns when I would eat. Now if he hears me get a cup, silverware, or my pills, from any room, he will start getting upset. I breathe. When he screams I make him come to me and we go through the steps of what I’m doing and how it hasn’t changed me. When he is standing with me and seeing me do it he doesn’t get upset. It is truly interesting how his brain processes noises and the visual of something.
He stayed pretty calm as the night went on. He is reliving his decade of people. He went through everyone that he has ever met I think. He wanted to know where they all were. He was asking me lots of questions so I answered him in Spanish. He immediately started listening to everything in Spanish on YouTube. It is never a dull moment when the super brain is engaged. He has me guessing what he will come up with next and he always amazes me. And that is exactly why I call him “my amazing.”
He asked numerous times for bed and I knew it was so he could get to his Wednesday and then finally to his Thursday. I know he wants to make sure all his days will be routine for a while so Thursday will be huge for him. I’m thankful he had a great day and his love for school and his people shines through. Today is the day to make a difference in the world and watch it make the biggest difference in you. Smiles to all and donut daze!
He was very informative and inquisitive this morning. He pulled up his calendar to 2090 and he said, “Owen be a boy.” The math I had to go through to get this one figured out was way too much way too early but I said he would be an adult. He moved on to 2100 and he asked me if he would be in high school. At this point, I think he is just trying to get a reaction from me because we have discussed when he is going to high school but I proceed with telling him he will be an adult then. He asked me what I would be and I redirected him back to him being an adult. I didn’t want to think about all the things that meant as him being an adult without me.
We went through our morning routine and we got outside for the bus. The pure joy he had when he saw it turn the corner is always a beautiful sight to witness. I always want the drivers and aides to know what a difference they make in our kids’ lives. For Owen, the bus is such a joy and part of the routine that he loves. I am beyond thankful for the care they take of him.
After he left I was off to my surgeon’s for my follow-up appointment. Everything is healing nicely and I now don’t have to go back for six months. It is such a relief to be on this side of the coin. I am so thankful for God's grace and for walking through this journey with me.
When Owen got home he had a lot to say but he was pretty calm. He was ready to stay home and sit. He didn’t say too much about school at first but he had a lot to say about his week ahead. He was ready for his Wednesday so he could get to his Thursday. He wanted to know what his therapists would be wearing and if they would all have their hair up. I know that he is questioning more about people’s hair since mine is no longer long and blonde. He doesn’t ask me as much about when I will have long hair again but I think it has transferred to everyone else.
I’m not quite sure why this has become a full circle moment and we are back to something that has been gone for years but he gets very anxious when he thinks I am putting something in my mouth. He will start yelling “You’re amazing” because he wants me to keep talking to him instead of eating, drinking, or taking my medicine. When he was little he would have huge meltdowns when I would eat. Now if he hears me get a cup, silverware, or my pills, from any room, he will start getting upset. I breathe. When he screams I make him come to me and we go through the steps of what I’m doing and how it hasn’t changed me. When he is standing with me and seeing me do it he doesn’t get upset. It is truly interesting how his brain processes noises and the visual of something.
He stayed pretty calm as the night went on. He is reliving his decade of people. He went through everyone that he has ever met I think. He wanted to know where they all were. He was asking me lots of questions so I answered him in Spanish. He immediately started listening to everything in Spanish on YouTube. It is never a dull moment when the super brain is engaged. He has me guessing what he will come up with next and he always amazes me. And that is exactly why I call him “my amazing.”
He asked numerous times for bed and I knew it was so he could get to his Wednesday and then finally to his Thursday. I know he wants to make sure all his days will be routine for a while so Thursday will be huge for him. I’m thankful he had a great day and his love for school and his people shines through. Today is the day to make a difference in the world and watch it make the biggest difference in you. Smiles to all and donut daze!
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