Well, four o’clock in the morning is better than three o’clock but attitude is also important. He was so excited about West Virginia day at camp. He was talking about all the things he was going to do today and seeing his people. The week of activities made a huge difference in both our lives.
He knew we had a call from his advisor for the program he is on at ten and he was so excited to hear the phone ring. It is always interesting how he handles phone calls. I never know how he is going to process them and if he will scream the whole time I am on them. Yesterday he wasn’t happy when the nurse called about my infusion and he talked the whole time but other days he loves it when people call but he then wants them to hang up immediately
or he will keep asking me who they are and when they are going to hang up. Since my cancer diagnosis, I have been on the phone a lot more. It was getting easier for him but then when the calls were almost every day his emotions got stronger again about them. His advisor had worked with us for years when she would call to help him process it so he now at least doesn’t have meltdowns when someone calls. It doesn’t matter if my phone is on silent or ringing he has the same reaction. And one of his favorite things to do on his phone is watch videos of phones ringing and people talking on them.
After our call, we got ready and left for his camp. It was his last day. I tried not to point that out to him and made sure he knew he was coming back on Monday for his music therapy. He has enjoyed all of the days and activities. He was excited and talked about it the whole way there. He couldn’t wait to see “his people.”
He did so well at camp. Owen quickly took to one of the volunteers with the camp. She already understood a lot of what he does and how he reacts to responses and emotions. This helped him tremendously through the camp. I’m thankful for this incredible experience for him. The staff worked hard to not only create a fun environment for them but also include so many activities that promoted social skills and a beautiful learning experience.
Every day he left there full of stories and telling me about the activities. This isn’t always easy for him to explain to me so I was thankful for these moments in the car with details about his day. He wanted Hardee’s on the way home and to “drive around and see the blue church.” It’s interesting how he sees the world. Across the street from what he calls the blue church is what could be considered the blue church. It has a blue roof but he calls it the tall church. The “blue church” has reflective windows that lets him see the sky in them so he calls it the “blue church.” This is my assumption because of the way he describes it to me but it could mean something else to him.
I told Owen that if we were up before five and he didn’t let me sleep we would be staying home tomorrow. I explained that every day this week we were up very early and mommy needed rest. I prayed for sleep for both of us and that he would stay in bed later. He was pretty calm throughout the night. I tried to keep him up later but he fell asleep in my bed and then it was harder to get him calmly to his room. He kept wanting to talk about what we were doing next week and if it was summer break. He knows it is until August but he still has to process it. I’m thankful for an incredible week and how much it meant to both of us. His smile said it all and made my heart happier. Be in the moment, let your happiness shine through, and know that the rain makes the flowers grow. Smiles to all and donut daze!
He knew we had a call from his advisor for the program he is on at ten and he was so excited to hear the phone ring. It is always interesting how he handles phone calls. I never know how he is going to process them and if he will scream the whole time I am on them. Yesterday he wasn’t happy when the nurse called about my infusion and he talked the whole time but other days he loves it when people call but he then wants them to hang up immediately
or he will keep asking me who they are and when they are going to hang up. Since my cancer diagnosis, I have been on the phone a lot more. It was getting easier for him but then when the calls were almost every day his emotions got stronger again about them. His advisor had worked with us for years when she would call to help him process it so he now at least doesn’t have meltdowns when someone calls. It doesn’t matter if my phone is on silent or ringing he has the same reaction. And one of his favorite things to do on his phone is watch videos of phones ringing and people talking on them.
After our call, we got ready and left for his camp. It was his last day. I tried not to point that out to him and made sure he knew he was coming back on Monday for his music therapy. He has enjoyed all of the days and activities. He was excited and talked about it the whole way there. He couldn’t wait to see “his people.”
He did so well at camp. Owen quickly took to one of the volunteers with the camp. She already understood a lot of what he does and how he reacts to responses and emotions. This helped him tremendously through the camp. I’m thankful for this incredible experience for him. The staff worked hard to not only create a fun environment for them but also include so many activities that promoted social skills and a beautiful learning experience.
Every day he left there full of stories and telling me about the activities. This isn’t always easy for him to explain to me so I was thankful for these moments in the car with details about his day. He wanted Hardee’s on the way home and to “drive around and see the blue church.” It’s interesting how he sees the world. Across the street from what he calls the blue church is what could be considered the blue church. It has a blue roof but he calls it the tall church. The “blue church” has reflective windows that lets him see the sky in them so he calls it the “blue church.” This is my assumption because of the way he describes it to me but it could mean something else to him.
I told Owen that if we were up before five and he didn’t let me sleep we would be staying home tomorrow. I explained that every day this week we were up very early and mommy needed rest. I prayed for sleep for both of us and that he would stay in bed later. He was pretty calm throughout the night. I tried to keep him up later but he fell asleep in my bed and then it was harder to get him calmly to his room. He kept wanting to talk about what we were doing next week and if it was summer break. He knows it is until August but he still has to process it. I’m thankful for an incredible week and how much it meant to both of us. His smile said it all and made my heart happier. Be in the moment, let your happiness shine through, and know that the rain makes the flowers grow. Smiles to all and donut daze!
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