I woke up several times to go to the bathroom but went back to sleep quickly. I was tired when I woke up but my stomach was playing nice mostly. For the next few weeks, food won’t taste great but that is what I expected. I think I’m off to a great start with this infusion.
He once again wanted to go to school but needed me to sit so he could process it all. He was calm but he didn’t want me to be doing a lot this morning. We got dressed and the bus was almost here to pick him up so we went outside. He was so happy when he saw the bus come up the street.
When he got home he was making sure of his days ahead and when he would go back to school. He was not calm right away because he needed to process the holiday on Monday. This led him to make sure he would see his teacher in December as well. He stood in the kitchen tapping his food repeating all of the days he thought he had off and that he was going back to the old school.
He made his request to be at his grandma’s house tomorrow and Monday. I told him if he slept all night he would see his grandma tomorrow but if he didn’t he wouldn’t get to go. He said he would sleep all night.
He was calm after that and we played lots of games. He needs the confirmation of everything and the reassurance that it will be fine. He has come so far and I know how much he has grown. Here’s to a great weekend and no “upper night” for both of us. His laughter is my best medicine and I’m so thankful for it. Be joyful and let your heart guide your days ahead. Smiles to all and donut daze!