I slept for a straight four hours. That was a huge accomplishment for me. Owen was awake maybe around four. That’s when my four hours stopped but thankfully I went back to sleep until about five. He was calm but he was predicting he wouldn’t go back to school until August.
I knew he was having a hard time understanding it all but yet he gets it as well. As difficult as it has been he has truly been able to process it and get those leprechauns working. He asked me many times if I knew he would have school. At one point he said, “Monday will be broken might stay home Monday might.” I prayed harder.
He was in repeat mode about all of this so I started talking to him. I said, “You know the way to my heart is your smile” and he smiled real big. I said, “You know the way to my heart is your incredible laugh.” He walked into the kitchen, did this huge fake laugh, and said, “Laugh in her heart.” He is my greatest joy.
“Bunny ears on,” he said. It has come to the point where he needs me to wear them. My hair has started to grow in but it is a patchwork quilt of grays and white. “Yellow hair yellow hair,” he said as he was sitting next to me. I had taken my bunny ears off because my head was hot. He tried to lick my head and then said that I would have yellow hair in February.
February and August seem to be his months of concentration right now. He wanted to know what his aide would be wearing in February. He went back and forth insisting he would be wearing shorts in February. At some point, I just have to agree with him to move us forward or it spins into meltdowns if I answer the wrong way.
He was so happy I found his lens that hadn’t fallen out of his glasses. I don’t know how long it will last again since he likes to twist them but he couldn’t wait to wear them. When I showed him his glasses he gasped and said, “My new purple glasses they came” and put them right on. I didn’t try to explain that they weren’t new.
The leprechauns did their part today. We got warm enough to melt a lot of the snow so there will be a two-hour delay but they will be going to school. Owen said he will have time for waffles and a sausage dog before he goes to school. He also was excited because he would get to go to therapy. He was hoping that the leprechauns and “night Santa” would be at his therapy.
I am so thankful they will be back at school tomorrow. I have a follow-up appointment with my chemo doctor tomorrow and I should find out if I will be having more chemo or if they will wait to tell me after the radiation. I think about Owen’s amazing laugh and his words when I told him I loved it. My heart is full. Let laughter fill your heart with gladness and know that it will always make you smile. Smiles to all and donut daze!
I knew he was having a hard time understanding it all but yet he gets it as well. As difficult as it has been he has truly been able to process it and get those leprechauns working. He asked me many times if I knew he would have school. At one point he said, “Monday will be broken might stay home Monday might.” I prayed harder.
He was in repeat mode about all of this so I started talking to him. I said, “You know the way to my heart is your smile” and he smiled real big. I said, “You know the way to my heart is your incredible laugh.” He walked into the kitchen, did this huge fake laugh, and said, “Laugh in her heart.” He is my greatest joy.
“Bunny ears on,” he said. It has come to the point where he needs me to wear them. My hair has started to grow in but it is a patchwork quilt of grays and white. “Yellow hair yellow hair,” he said as he was sitting next to me. I had taken my bunny ears off because my head was hot. He tried to lick my head and then said that I would have yellow hair in February.
February and August seem to be his months of concentration right now. He wanted to know what his aide would be wearing in February. He went back and forth insisting he would be wearing shorts in February. At some point, I just have to agree with him to move us forward or it spins into meltdowns if I answer the wrong way.
He was so happy I found his lens that hadn’t fallen out of his glasses. I don’t know how long it will last again since he likes to twist them but he couldn’t wait to wear them. When I showed him his glasses he gasped and said, “My new purple glasses they came” and put them right on. I didn’t try to explain that they weren’t new.
The leprechauns did their part today. We got warm enough to melt a lot of the snow so there will be a two-hour delay but they will be going to school. Owen said he will have time for waffles and a sausage dog before he goes to school. He also was excited because he would get to go to therapy. He was hoping that the leprechauns and “night Santa” would be at his therapy.
I am so thankful they will be back at school tomorrow. I have a follow-up appointment with my chemo doctor tomorrow and I should find out if I will be having more chemo or if they will wait to tell me after the radiation. I think about Owen’s amazing laugh and his words when I told him I loved it. My heart is full. Let laughter fill your heart with gladness and know that it will always make you smile. Smiles to all and donut daze!
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