I woke up once last night because my bladder runs my life. I went back to sleep and then slept until about five. Owen woke a little after me and proudly claimed he “slept upper night.” He went to the couch and talked to me about his days ahead.
He has been asking about “shark bite” for days. I asked if anyone knew what it could be. Shark Bite game for the win. I thought it was several of the other suggestions at first but then I showed him the game He said, “Order it” mailman bring it. He must have played it with one of his therapists or possibly at school. He also likes the idea of the shark bite fish sticks I showed him.
He sat with me for almost an hour playing his games and wanting me to watch him. He wants me to play them but as soon as I do he takes my hand and won’t let me do any of the moves I want to do so I tell him it’s his game and I will watch him play it.
His bus got here early this morning so we quickly got outside to wait for the bus. He was very calm about it and was off to school. When he came home he started asking about the Shark Bite game and who he was going to see tomorrow since it was my infusion day. He told me all about what I would be wearing and who he would be seeing. He told me I would be wearing “camo, yellow bunny ears, black shoes.” He also told me that I would get medicine in my “medicine box” and it would make me feel better.
We came inside and I fixed Owen’s snack. Shortly after that, he saw a car park in front of our house. It’s a public street but how do I explain to him that they are allowed to park there? He needs the street to look like he needs it to look. This immediately sent him into a huge meltdown that lasted more than two hours. It was still going on after the car left. It breaks my heart. He was crying, screaming, pacing, and checking out the window every few minutes. He wanted to make sure it wasn’t someone we knew and why they weren’t moving. He was also worried they were coming to visit us. He can’t always handle people being here. I wish I knew how to help him through this. All I can do is remind him I love him and that we need to breathe through the moments.
The rest of the night was calmer. He was happy to talk about Shark Bite, his day tomorrow, and who he hopes he sees in the coming week. I’m thankful for all the connections he is making and the growth that I see every day. Believe in change and know that you can make the world a better place with your smile. Smiles to all and donut daze!
He has been asking about “shark bite” for days. I asked if anyone knew what it could be. Shark Bite game for the win. I thought it was several of the other suggestions at first but then I showed him the game He said, “Order it” mailman bring it. He must have played it with one of his therapists or possibly at school. He also likes the idea of the shark bite fish sticks I showed him.
He sat with me for almost an hour playing his games and wanting me to watch him. He wants me to play them but as soon as I do he takes my hand and won’t let me do any of the moves I want to do so I tell him it’s his game and I will watch him play it.
His bus got here early this morning so we quickly got outside to wait for the bus. He was very calm about it and was off to school. When he came home he started asking about the Shark Bite game and who he was going to see tomorrow since it was my infusion day. He told me all about what I would be wearing and who he would be seeing. He told me I would be wearing “camo, yellow bunny ears, black shoes.” He also told me that I would get medicine in my “medicine box” and it would make me feel better.
We came inside and I fixed Owen’s snack. Shortly after that, he saw a car park in front of our house. It’s a public street but how do I explain to him that they are allowed to park there? He needs the street to look like he needs it to look. This immediately sent him into a huge meltdown that lasted more than two hours. It was still going on after the car left. It breaks my heart. He was crying, screaming, pacing, and checking out the window every few minutes. He wanted to make sure it wasn’t someone we knew and why they weren’t moving. He was also worried they were coming to visit us. He can’t always handle people being here. I wish I knew how to help him through this. All I can do is remind him I love him and that we need to breathe through the moments.
The rest of the night was calmer. He was happy to talk about Shark Bite, his day tomorrow, and who he hopes he sees in the coming week. I’m thankful for all the connections he is making and the growth that I see every day. Believe in change and know that you can make the world a better place with your smile. Smiles to all and donut daze!
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