Owen woke about fifteen minutes before my preferred wake-up time of five o’clock. Technically I would love for it to be six o’clock or even seven but progress is progress. One scream, one discussion, one trip to his, room, one trip back to me, and off with his tablet he went at almost five. There is this fine line between me getting him to settle and at least being calm or sticking so close to the five o’clock timeframe that screams continue to rain down on me. I choose a little more sleep.
He was calm after that and the extra little bit of sleep I did get helped. He is very confused that he doesn’t get to go to summer school and as much as he knows when August is he is still having a hard time processing it. Summer isn’t supposed to be this long without his routine. It breaks my heart that he doesn’t get to have the routine that he craves. He is struggling with how long summer break is already. He goes back and forth saying “Summer break is ending” and then turns around and says “Summer break is on Friday.”
Some days it is all about the emotions. His, mine, ours, and how we handle it. And some days all I want to do is cry. Owen doesn’t always understand how to handle a situation even if in the moment he is doing well. We had to drop off a package before we went to his therapy. I’m teaching him how to hold and carry different items. I’m trying to give him more specific tasks to do that especially work towards more independent goals. He did well going into the building and helping me drop off the package but it was the twists and turns in the road and tons of detours that got him. Anything that is a little out of the ordinary for the roads he knows is very hard on him. We got through it with only a few screams and then we were on our way to his therapy.
I sat praying that he would have a good time at his therapy. I ask myself over and over and over again how did we get to the point that clothes have become this thing that derails so many of our moments. I wait for the screams, the tears, and the meltdowns over someone simply wearing something he doesn’t expect or want them to wear. I say “simply” but to him, there is nothing simple about it. This has been going on for years and still no answers to work through it. I’m trying the “forget about clothes” and “you get to go swimming” approach but is that even fair when I know there is so much more to his emotions than letting it go like that? I wish I was a fly on my own wall sometimes to see if there would be a different way for me to handle it. It's always amazing how others see so much clearer through my eyes.
The best news ever was that he had two amazing sessions with both his therapists. His physical therapist said that it was one of the best sessions he had in a very long time and he was able to self-regulate. He was interested in the exercises and even told his therapist he was going to go swimming so he made that connection. I hope that he can continue to work through this and know that he gets to do things that he loves when he has good behavior.
“It is ridiculous,” he said to me. It is one of the funniest phrases he has picked up from me. I love hearing him say it in his little southern accent that kind of sounds like Donald Duck, taking each one of the syllables to a whole new level but he is referencing it correctly which makes me happy.
We got his pizza on the way home from his therapy and he was quite happy with his choice. Nighttime came quickly and I hope that he sleeps past five tomorrow or at least no screaming. I am beyond thankful for a successful therapy session and it makes me happy that he enjoyed his day. Those little victories are what lead to the huge rewards. Celebrate your little victories and know they will lead you to an incredible tomorrow. Smiles to all and donut daze!
He was calm after that and the extra little bit of sleep I did get helped. He is very confused that he doesn’t get to go to summer school and as much as he knows when August is he is still having a hard time processing it. Summer isn’t supposed to be this long without his routine. It breaks my heart that he doesn’t get to have the routine that he craves. He is struggling with how long summer break is already. He goes back and forth saying “Summer break is ending” and then turns around and says “Summer break is on Friday.”
Some days it is all about the emotions. His, mine, ours, and how we handle it. And some days all I want to do is cry. Owen doesn’t always understand how to handle a situation even if in the moment he is doing well. We had to drop off a package before we went to his therapy. I’m teaching him how to hold and carry different items. I’m trying to give him more specific tasks to do that especially work towards more independent goals. He did well going into the building and helping me drop off the package but it was the twists and turns in the road and tons of detours that got him. Anything that is a little out of the ordinary for the roads he knows is very hard on him. We got through it with only a few screams and then we were on our way to his therapy.
I sat praying that he would have a good time at his therapy. I ask myself over and over and over again how did we get to the point that clothes have become this thing that derails so many of our moments. I wait for the screams, the tears, and the meltdowns over someone simply wearing something he doesn’t expect or want them to wear. I say “simply” but to him, there is nothing simple about it. This has been going on for years and still no answers to work through it. I’m trying the “forget about clothes” and “you get to go swimming” approach but is that even fair when I know there is so much more to his emotions than letting it go like that? I wish I was a fly on my own wall sometimes to see if there would be a different way for me to handle it. It's always amazing how others see so much clearer through my eyes.
The best news ever was that he had two amazing sessions with both his therapists. His physical therapist said that it was one of the best sessions he had in a very long time and he was able to self-regulate. He was interested in the exercises and even told his therapist he was going to go swimming so he made that connection. I hope that he can continue to work through this and know that he gets to do things that he loves when he has good behavior.
“It is ridiculous,” he said to me. It is one of the funniest phrases he has picked up from me. I love hearing him say it in his little southern accent that kind of sounds like Donald Duck, taking each one of the syllables to a whole new level but he is referencing it correctly which makes me happy.
We got his pizza on the way home from his therapy and he was quite happy with his choice. Nighttime came quickly and I hope that he sleeps past five tomorrow or at least no screaming. I am beyond thankful for a successful therapy session and it makes me happy that he enjoyed his day. Those little victories are what lead to the huge rewards. Celebrate your little victories and know they will lead you to an incredible tomorrow. Smiles to all and donut daze!
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