What a great start to our day! Owen slept all night. I slept for about four hours straight. He was in a great mood. The bus app was working. And I was not showing any of the additional symptoms from the infusion just the regular old symptoms.
He was a little wound up before bed so I was praying hard for sleep! Thankfully he is sleeping much better now that his routine is mostly in order with being back in school. He was very ready for his day and couldn’t wait for the bus to get here. When he wakes up in the mornings he is all talk and talk and talk. And then we talk some more. It’s a pretty wild ride. I need lots of coffee to get going and he doesn’t quite understand that.
We got ready for the bus and he started telling me about different people he was missing. He told me the last time he saw them and that he wanted to see them again. His memory blows my mind even though I see what he is capable of remembering and doing. We went out to wait for the bus and he was very excited because when he got home from school we were going to pick up our friend for dinner. And he didn’t want me to forget.
When he got off the bus the first thing he wanted me to know was that we were picking up our friend for dinner. He wanted a snack first for my growing boy and then we were off. To say he was excited and hyper was an understatement. We got there and he was so happy.
Off to the restaurant we went. He continued to be very hyper and excited but thankfully he was still able to maintain his composure. He wanted pancakes and bacon for dinner. He was so happy to be there with our friend. We finished eating and I asked him if he wanted to go anywhere else. The only place he had requested was to go back to her house and sit under the trees.
We drove back to her house and there they sat playing on his tablet. I can imagine the conversation they had. She is very patient with him and in his very hyper moments, she calms him down tremendously. After a while, we left and he talked about moving to the woods with purple cows. I love that he is embracing the thought of moving. Now to find some property with woods and purple cows.
The minute we walked in our door the screaming began. Everything was open for debate and for him to scream at me. I can only imagine what was going through his mind. Plus I know that it is hard for him when his schedule is off even when it is something he wants to do. He finally calmed down and we sat together laughing before he got ready for bed.
It only took a few stomps and screams after our prayers for Owen to go to bed. He prayed for our friends, his teacher and aides, and his grandma. His last part of his prayer was that he hoped he would sleep tonight. I prayed that too. I see so much growth. When his brain catches up to his words or his words catch up to his brilliant brain I know that we are going to be in for even more of an amazing treat. His memory will spill over and it will be wonderful to hear all his stories from times gone by. Dream your dream and make it happen. Smiles to all and donut daze!
He was a little wound up before bed so I was praying hard for sleep! Thankfully he is sleeping much better now that his routine is mostly in order with being back in school. He was very ready for his day and couldn’t wait for the bus to get here. When he wakes up in the mornings he is all talk and talk and talk. And then we talk some more. It’s a pretty wild ride. I need lots of coffee to get going and he doesn’t quite understand that.
We got ready for the bus and he started telling me about different people he was missing. He told me the last time he saw them and that he wanted to see them again. His memory blows my mind even though I see what he is capable of remembering and doing. We went out to wait for the bus and he was very excited because when he got home from school we were going to pick up our friend for dinner. And he didn’t want me to forget.
When he got off the bus the first thing he wanted me to know was that we were picking up our friend for dinner. He wanted a snack first for my growing boy and then we were off. To say he was excited and hyper was an understatement. We got there and he was so happy.
Off to the restaurant we went. He continued to be very hyper and excited but thankfully he was still able to maintain his composure. He wanted pancakes and bacon for dinner. He was so happy to be there with our friend. We finished eating and I asked him if he wanted to go anywhere else. The only place he had requested was to go back to her house and sit under the trees.
We drove back to her house and there they sat playing on his tablet. I can imagine the conversation they had. She is very patient with him and in his very hyper moments, she calms him down tremendously. After a while, we left and he talked about moving to the woods with purple cows. I love that he is embracing the thought of moving. Now to find some property with woods and purple cows.
The minute we walked in our door the screaming began. Everything was open for debate and for him to scream at me. I can only imagine what was going through his mind. Plus I know that it is hard for him when his schedule is off even when it is something he wants to do. He finally calmed down and we sat together laughing before he got ready for bed.
It only took a few stomps and screams after our prayers for Owen to go to bed. He prayed for our friends, his teacher and aides, and his grandma. His last part of his prayer was that he hoped he would sleep tonight. I prayed that too. I see so much growth. When his brain catches up to his words or his words catch up to his brilliant brain I know that we are going to be in for even more of an amazing treat. His memory will spill over and it will be wonderful to hear all his stories from times gone by. Dream your dream and make it happen. Smiles to all and donut daze!
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