I wonder if this is where all the days start blending together. Owen slept until three or this is when I heard him at least. He may have gotten up earlier but he was very quiet at that point if he was. He knew where he was going and what he wanted to do today. And he made sure I knew. Grandma was the talk of the town or at least this corner of it. I’m thankful for his connection with my mom because I know exactly how he feels. Today also made me realize that as much as routine is good for him it is also hard on Owen. His expectation of how all his days will go causes a spiral effect and the repetitive behaviors are hard for me to get in front of. Once he got done talking about his grandma he started talking about all his days ahead. He said, “Monday be with mommy tomorrow” more times than I can count and if he didn’t say Monday he would add in the other days. This is also hard because he won’t have vision therapy on Monday and he knows this. He asks for it and then says, “two weeks.” I know he finds comfort in his routine but it is hard when anything changes. I’m thankful for church tomorrow. Saturdays are his day with his grandma and then in the summer there are extra days but I am always trying to figure out if it will be better for random days instead of it always being Saturday. His repetitive behaviors go into overdrive when he can’t get in control of his schedule though. I keep telling myself I can overthink only so much. He had a good time at his grandma’s but bowling nor bike riding were options. He had another hard afternoon with his expectations of where he was going and which landmarks he was seeing. I can only imagine how hard it is for him when something like turning the wrong direction by a fire hydrant that he wants to see can cause hours of him being sad or meltdowns. We got home and he kept saying “concentrate on today.” He brought me his tablet with a picture zoomed in of a local restaurant. He started talking about its sign. He says it’s “Owen’s sign” because it has the word “open” on it and he repeats Owen and open. He knows it says open but he still calls it Owen’s sign. Then he tells me it “has a neck and body and leg” because of the way the sign is shaped. He also told me it has a smile with “lips on” because how the letters and colors are. He explains all the shapes that are on the whole sign. Then he zoomed out and the video was taken from a block away because the person turned at the block before. This is the same video that he found his “alphabet building” in that is now gone. He then started asking YouTube for all the videos he can find that were related to the restaurant. I don’t know why I still get amazed at how he finds things and pieces it all together but it is amazing to me. His mind remembers so many little details. I’m thankful for the laughter and hugs he shared with me. The challenges we face head-on will be the victories that mean the most and show you exactly how strong you are. You are the victory. Smiles to all and donut daze!
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AuthorI'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart. Archives
December 2024
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