What a difference a day makes for so many things. “Upper night,” Owen said repeatedly to me before it was even midnight. He may have slept an hour when he first went to bed. Summer break, his games, and April were all on his mind. He kept getting out of bed and asking for his tablet. I knew I needed sleep so I finally gave him his tablet but told him he had to stay in bed. I slept in between battery times. I woke up already feeling so much better than yesterday. My strength was returning and I could feel it.
This morning when he started talking about “summer break Friday” I told him that every time he mentioned it I would take his tablet for five minutes. The first time I took it he was not happy but he went off to play with his caterpillar and then it took him about an hour before he mentioned it on Friday again. I did this throughout the day and it made a huge difference. This is the first thing that has ever worked to help with his repetitive words. I only had to do it about five times the entire day and that makes my heart sing with joy. I will try this with the next set of words that he begins to focus on.
As soon as I got up I fixed us both breakfast. I keep snacks by my bedside so every time he woke me up I ate a bite that way it would help. I made sure to eat small portions and snacks every few hours but the difference from yesterday was already huge. Each day I am learning more ways to adapt and if something doesn’t taste right to not even push it because it is not worth it. Goldfish and mashed potatoes so far are the only two foods that have consistently been fine.
Owen asked Alexa to translate this incredibly complex sentence about the bear he likes in a game. “Ice cream fell bear sad bear has brown eyes bear happy” and on and on he went. The details and thought process he is starting to go through are incredible and I know that this school year will be incredible for him.
“Hair wash hair wet it will be clean soon,” he said as he stood twirling his hair after his bath. It was one more of those moments I felt like everything was coming together for him. These nights that he doesn’t sleep always seem to have a purpose. I can’t say for sure but it is like something in his brain is moving through a whirlwind of life and the learning wheel is there. The journey is amazing to watch.
He yawned a few times throughout the day but lasted until bedtime. I did not even want to try to have him sleep early because that could change our night again. He is very excited about tomorrow because his grandma is going to take him to therapy.
Today was a great day for Owen and me. I pray he sleeps tonight but I’m pretty positive he will. I feel like tomorrow should be a better day for me as well. The rollercoaster ride changes all the time but the focus is on the good stuff. His laughter, the sparkle in his eyes, and his little southern twang when he laughs at the bear dropping his ice cream and saying, “Ice cream fell” is the joy that all of us need to have in our hearts. Let joy fill your heart and let laughter make your day. Smiles to all and donut daze!
This morning when he started talking about “summer break Friday” I told him that every time he mentioned it I would take his tablet for five minutes. The first time I took it he was not happy but he went off to play with his caterpillar and then it took him about an hour before he mentioned it on Friday again. I did this throughout the day and it made a huge difference. This is the first thing that has ever worked to help with his repetitive words. I only had to do it about five times the entire day and that makes my heart sing with joy. I will try this with the next set of words that he begins to focus on.
As soon as I got up I fixed us both breakfast. I keep snacks by my bedside so every time he woke me up I ate a bite that way it would help. I made sure to eat small portions and snacks every few hours but the difference from yesterday was already huge. Each day I am learning more ways to adapt and if something doesn’t taste right to not even push it because it is not worth it. Goldfish and mashed potatoes so far are the only two foods that have consistently been fine.
Owen asked Alexa to translate this incredibly complex sentence about the bear he likes in a game. “Ice cream fell bear sad bear has brown eyes bear happy” and on and on he went. The details and thought process he is starting to go through are incredible and I know that this school year will be incredible for him.
“Hair wash hair wet it will be clean soon,” he said as he stood twirling his hair after his bath. It was one more of those moments I felt like everything was coming together for him. These nights that he doesn’t sleep always seem to have a purpose. I can’t say for sure but it is like something in his brain is moving through a whirlwind of life and the learning wheel is there. The journey is amazing to watch.
He yawned a few times throughout the day but lasted until bedtime. I did not even want to try to have him sleep early because that could change our night again. He is very excited about tomorrow because his grandma is going to take him to therapy.
Today was a great day for Owen and me. I pray he sleeps tonight but I’m pretty positive he will. I feel like tomorrow should be a better day for me as well. The rollercoaster ride changes all the time but the focus is on the good stuff. His laughter, the sparkle in his eyes, and his little southern twang when he laughs at the bear dropping his ice cream and saying, “Ice cream fell” is the joy that all of us need to have in our hearts. Let joy fill your heart and let laughter make your day. Smiles to all and donut daze!
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