We mostly slept. Owen woke up a tiny bit early but even after I had him read the clock he decided it was time for him to have his tablet. I didn’t want to have a rocking boat so a few minutes before five looked good to me. He made sure I knew he was taking it back to his room. At least the follow-through was there. I got up anyway and made my coffee and his first breakfast. The dude is definitely eating more like a teenager now.
It was a calmer morning than yesterday. I didn’t tell him that his grandma might be picking him up because of how long my infusion could run. As the morning went on I decided not to tell him in case he could come straight home which would work better for keeping his routine. Plus, I thought better to keep the calm morning going. I could tell he was upset about yesterday because he kept asking if he could go see his vision doctor today. I thought it was good that he was processing it all.
“The bus gets to wear what the bus wants to wear,” he said as we were waiting for the bus. Boy, oh boy, does that boy think of everything. He was off and happy to see his friends on the bus. As the morning went on I was hoping that my infusion would be over early enough so that he could ride the bus home. I knew he would be happy if his grandma picked him up but routine for the night was what we needed.
Thankfully my infusion went well and it was early enough even with the supplement they had to give me. He got home and he was happy. He was very calm even though I wasn’t wearing a dress he liked it was still the same one I wore in the morning. He told me that I was wearing a camo dress and I was going to put the mauve dress on when he got home. When he got to the porch he gave me a kiss and a hug, and told me he was home. I am loving these hugs and kisses that he does randomly.
We got inside and he told me again about my dress and I said we aren’t going to talk about it anymore. He mostly listened. He loves looking at his Santa picture and told me that he was going to get a present from Santa. He said, “Santa give me a candy cane and say thank you.” He told me he gets to see two Santas. He knocked his Santa picture off the refrigerator. He was about to get upset and I told him he needed to put the magnets back on it. He couldn’t figure out what I meant so he opened the door and was going to put it inside. I told him to let me help him and I showed him how to pull them off. He pulls them off all the time but I don’t think he understood they hold things up. He remained calm though through the whole process.
He wanted me to change immediately but I told him that first I was getting him a snack and we were going to talk about his day before I changed. He said, “dot marker go change.” I finished getting his snack and went to change after asking for a little more detail about the dot markers. He hugged me and put his forehead in front of me to kiss more times than I can count and he hardly ever does it without me hugging him first. When I was leaning down talking to him he kissed me on my cheek. That is the second time he has done that recently and he never used to do that.
I can tell he was processing it all and still kept telling me he could not go to vision therapy. I stayed calm and told him that we would go next week. I hope this is helping him process his emotions and maybe he will realize that we can breathe through some of these moments and that will help calm him. Each day I see progress even though I know it is hard for him to process it all.
The night went quickly and bedtime went smoothly. He was a little upset and wouldn't get in his bed because I had some laundry in my hand but I put it down and he was able to get in his bed. I have to remember it is all about the process for him. He fell asleep quickly and hopefully we will both sleep all night. I’m thankful for how I’m feeling after my infusion and even more thankful I only have two left. Let the challenges of today be your victories of tomorrow and watch how strong you become. Smiles to all and donut daze!
It was a calmer morning than yesterday. I didn’t tell him that his grandma might be picking him up because of how long my infusion could run. As the morning went on I decided not to tell him in case he could come straight home which would work better for keeping his routine. Plus, I thought better to keep the calm morning going. I could tell he was upset about yesterday because he kept asking if he could go see his vision doctor today. I thought it was good that he was processing it all.
“The bus gets to wear what the bus wants to wear,” he said as we were waiting for the bus. Boy, oh boy, does that boy think of everything. He was off and happy to see his friends on the bus. As the morning went on I was hoping that my infusion would be over early enough so that he could ride the bus home. I knew he would be happy if his grandma picked him up but routine for the night was what we needed.
Thankfully my infusion went well and it was early enough even with the supplement they had to give me. He got home and he was happy. He was very calm even though I wasn’t wearing a dress he liked it was still the same one I wore in the morning. He told me that I was wearing a camo dress and I was going to put the mauve dress on when he got home. When he got to the porch he gave me a kiss and a hug, and told me he was home. I am loving these hugs and kisses that he does randomly.
We got inside and he told me again about my dress and I said we aren’t going to talk about it anymore. He mostly listened. He loves looking at his Santa picture and told me that he was going to get a present from Santa. He said, “Santa give me a candy cane and say thank you.” He told me he gets to see two Santas. He knocked his Santa picture off the refrigerator. He was about to get upset and I told him he needed to put the magnets back on it. He couldn’t figure out what I meant so he opened the door and was going to put it inside. I told him to let me help him and I showed him how to pull them off. He pulls them off all the time but I don’t think he understood they hold things up. He remained calm though through the whole process.
He wanted me to change immediately but I told him that first I was getting him a snack and we were going to talk about his day before I changed. He said, “dot marker go change.” I finished getting his snack and went to change after asking for a little more detail about the dot markers. He hugged me and put his forehead in front of me to kiss more times than I can count and he hardly ever does it without me hugging him first. When I was leaning down talking to him he kissed me on my cheek. That is the second time he has done that recently and he never used to do that.
I can tell he was processing it all and still kept telling me he could not go to vision therapy. I stayed calm and told him that we would go next week. I hope this is helping him process his emotions and maybe he will realize that we can breathe through some of these moments and that will help calm him. Each day I see progress even though I know it is hard for him to process it all.
The night went quickly and bedtime went smoothly. He was a little upset and wouldn't get in his bed because I had some laundry in my hand but I put it down and he was able to get in his bed. I have to remember it is all about the process for him. He fell asleep quickly and hopefully we will both sleep all night. I’m thankful for how I’m feeling after my infusion and even more thankful I only have two left. Let the challenges of today be your victories of tomorrow and watch how strong you become. Smiles to all and donut daze!
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