“Bowling trip bowling trip bowling trip” was where our excitement level started. Owen woke up numerous times before midnight and then he barely made it until five. Off routine and so much more I’m sure were on his mind. He was happy and calm at least so that is good. I was pretty much up and down all night as well.
It was hard for him to process everything this morning. He misses his routine. He comprehends more about breaks but it is still not something he loves. He thrives in routine and even though he understands when he has doctor appointments he is not going to school he still wants to know the process and when he will get to school so long breaks are still hard for him.
He asked me every few minutes when we were going on the “bowling trip.” At that point, we still had several hours to go. We finally got ready and he was so excited. He kept asking me about everyone who was going to be there and when they were coming. He wants to repeat all the details over and over.
We got there and he was super excited to see all his friends. He was in overdrive and asking lots of questions. He needed lots of support but he had so much fun. He did amazingly at taking turns. I was so proud of how he handled everything. He can’t wait to go again. I keep wondering if he will ever want to go every weekend like we used to.
We came home and ate lunch. He put all his robot BeatBos on the table while he ate. I told him they probably shouldn’t be on the table in case he spilled his milk. He told me he wouldn’t spill it. He did move them after he ate lunch though. We played for a while before it was time to go to his vision therapy.
On the way to his appointment, he did great in the car. He didn’t yell at me to “pay attention” which I was thankful for. He did well with his appointment. He was able to focus on the exercises but he was distracted by other things and needed more reassurance. His doctor is amazing with him and I am so thankful.
In a plot twist, I asked him if he wanted something different than pizza like a calzone and he said, “Burger King.” When we got out of the car to come inside for his appointment he said, “Order the Burger King.” I said, “I don’t have to order it until we get there.” He said, “Get in the car.” I told him that we would miss his appointment then. He said, “Burger King later.” We got it as soon as we left.
I pray that he sleeps tonight. Last night he was up and down a lot so I hope not having his routine and everything else he has been going through doesn’t keep him up tonight. He is happy that he gets to see his grandma tomorrow and some of our other relatives. Plus he is very happy that I have an appointment at the cancer center so he will get to spend more time with her. Some days the road is bumpy but happy moments are worth everything. His laughter is my joy. Never give up hope for tomorrow. Smiles to all and donut daze!
It was hard for him to process everything this morning. He misses his routine. He comprehends more about breaks but it is still not something he loves. He thrives in routine and even though he understands when he has doctor appointments he is not going to school he still wants to know the process and when he will get to school so long breaks are still hard for him.
He asked me every few minutes when we were going on the “bowling trip.” At that point, we still had several hours to go. We finally got ready and he was so excited. He kept asking me about everyone who was going to be there and when they were coming. He wants to repeat all the details over and over.
We got there and he was super excited to see all his friends. He was in overdrive and asking lots of questions. He needed lots of support but he had so much fun. He did amazingly at taking turns. I was so proud of how he handled everything. He can’t wait to go again. I keep wondering if he will ever want to go every weekend like we used to.
We came home and ate lunch. He put all his robot BeatBos on the table while he ate. I told him they probably shouldn’t be on the table in case he spilled his milk. He told me he wouldn’t spill it. He did move them after he ate lunch though. We played for a while before it was time to go to his vision therapy.
On the way to his appointment, he did great in the car. He didn’t yell at me to “pay attention” which I was thankful for. He did well with his appointment. He was able to focus on the exercises but he was distracted by other things and needed more reassurance. His doctor is amazing with him and I am so thankful.
In a plot twist, I asked him if he wanted something different than pizza like a calzone and he said, “Burger King.” When we got out of the car to come inside for his appointment he said, “Order the Burger King.” I said, “I don’t have to order it until we get there.” He said, “Get in the car.” I told him that we would miss his appointment then. He said, “Burger King later.” We got it as soon as we left.
I pray that he sleeps tonight. Last night he was up and down a lot so I hope not having his routine and everything else he has been going through doesn’t keep him up tonight. He is happy that he gets to see his grandma tomorrow and some of our other relatives. Plus he is very happy that I have an appointment at the cancer center so he will get to spend more time with her. Some days the road is bumpy but happy moments are worth everything. His laughter is my joy. Never give up hope for tomorrow. Smiles to all and donut daze!
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