“Slep all night,” Owen said to me as he turned the corner to my room. He then turned his focus on who he would see in August. He started listing his friends and then I think it dawned on him that he hadn’t asked for his tablet yet. He quickly asked for it and then off he ran back to his bedroom.
I fixed his breakfast and he started playing with the toys that we got yesterday. He wants to take apart the robot and “fix it.” He would bring it to me to turn it on but what he wants to do is use a screwdriver to take its ears off. I believe he is trying to take it apart like a video he watched when someone replaced some of its parts. I want him to be able to experience taking something apart but I can also see the tumbleweeds that would create if we take one toy apart.
The robot also brought back his requests for a robot in all the languages. The top request was for a Spanish one but there were many other choices as well. He asked in Spanish for a robot or at least I think he did because he also asked for it in English. I always wonder how many languages he knows.
He was very calm all morning except for his need to talk about the friends he wanted to see in August. I can only imagine how long it feels for him until he sees his friends again. I am trying to get him to do different activities but sometimes that in itself is a battle because he can’t process doing random activities yet if I try to tell him ahead of time it can also be hard for him to understand or to not fixate on.
He couldn’t wait to get to his music therapy. He kept asking me when we were going. Once I gave him the timeframe it was hard for him to do the steps to get ready. I told him when we were leaving to go put his shoes on and instead, he went to his room to play with his robots. He yelled from his room about leaving but still didn’t have his shoes on. I stood at the door ready to go so I finally opened it and he came running to get his shoes on.
“You know the answer” is what he said all the way there intertwined with his friends’ names that he wouldn’t see until August. He likes to see my response when he says certain things. I am trying to get him to understand he can use his words but he keeps saying “You know the answer” when there is no way I could know the answer. I am trying to give him other connections but he loves to watch me react.
We got to his music therapy and he was hoping to see one of his friends there. I hope that he will get to see more of his friends throughout the summer. I know he would love that. His therapist said he did amazing and was very calm. That is music to my ears.
I was trying to convince him to go ride his new bike at the park but this is still something he isn’t wanting to do. I’m not sure why he doesn’t want to ride his bike anymore but I will hopefully convince him to do it again soon.
The night was calm and tomorrow he is excited to go see his grandma while I go to have more tests and then meet with the care team at the cancer center. I’m thankful for all the support and prayers. Each day is a gift. Owen is doing amazing and I know that this will be a great summer of fun and learning for him. Be brave in the moments of challenge and know the victories will come. Smiles to all and donut daze!
I fixed his breakfast and he started playing with the toys that we got yesterday. He wants to take apart the robot and “fix it.” He would bring it to me to turn it on but what he wants to do is use a screwdriver to take its ears off. I believe he is trying to take it apart like a video he watched when someone replaced some of its parts. I want him to be able to experience taking something apart but I can also see the tumbleweeds that would create if we take one toy apart.
The robot also brought back his requests for a robot in all the languages. The top request was for a Spanish one but there were many other choices as well. He asked in Spanish for a robot or at least I think he did because he also asked for it in English. I always wonder how many languages he knows.
He was very calm all morning except for his need to talk about the friends he wanted to see in August. I can only imagine how long it feels for him until he sees his friends again. I am trying to get him to do different activities but sometimes that in itself is a battle because he can’t process doing random activities yet if I try to tell him ahead of time it can also be hard for him to understand or to not fixate on.
He couldn’t wait to get to his music therapy. He kept asking me when we were going. Once I gave him the timeframe it was hard for him to do the steps to get ready. I told him when we were leaving to go put his shoes on and instead, he went to his room to play with his robots. He yelled from his room about leaving but still didn’t have his shoes on. I stood at the door ready to go so I finally opened it and he came running to get his shoes on.
“You know the answer” is what he said all the way there intertwined with his friends’ names that he wouldn’t see until August. He likes to see my response when he says certain things. I am trying to get him to understand he can use his words but he keeps saying “You know the answer” when there is no way I could know the answer. I am trying to give him other connections but he loves to watch me react.
We got to his music therapy and he was hoping to see one of his friends there. I hope that he will get to see more of his friends throughout the summer. I know he would love that. His therapist said he did amazing and was very calm. That is music to my ears.
I was trying to convince him to go ride his new bike at the park but this is still something he isn’t wanting to do. I’m not sure why he doesn’t want to ride his bike anymore but I will hopefully convince him to do it again soon.
The night was calm and tomorrow he is excited to go see his grandma while I go to have more tests and then meet with the care team at the cancer center. I’m thankful for all the support and prayers. Each day is a gift. Owen is doing amazing and I know that this will be a great summer of fun and learning for him. Be brave in the moments of challenge and know the victories will come. Smiles to all and donut daze!
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