Calm is the answer. The calmer I can keep Owen the better the nights go. I was thankful for another successful night of sleep. He was ready for his day and told me about it when he woke up. He couldn’t wait to get to school to see who was going to be there and what they were going to do.
We were quickly at the crying baby stage of our morning with a side of why are the magical hats gone. I truly wish I could explain to him that manufacturers change their games all the time and they took that game away but it was one of his favorite games and now he asks about it constantly. And I wish the crying babies were at least set to normal speed. It is interesting how he can listen to some things over and over but certain sounds will send him through the roof. He likes the alarm on his tablet but he never wants to hear mine going off. I am always fascinated by how loud he will listen to something but he can still hear noises that are so quiet I’m shocked that he even heard it. He will run from the other room if my phone rings even on the quietest setting.
We got ready for school and headed out to wait for the bus. Without the bus app, it is kind of a guess as to what time they will be there. Generally, they arrive at pretty much the same time but I don’t want them to miss it because he loves it so much. He knows I’m taking him to school tomorrow so I can go to my infusion appointment so I definitely didn’t want him to miss it today.
I picked him up for music therapy and he told me he had a good day at school but still wanted to talk to me about bleeding, spitting, hitting, and kicking. These are all things he loves to talk about but generally never does. The boy era is upon us. I try not to react and my go-to is to distract him but he senses every part of my emotions and wants to talk about it more. I quickly turned to talking about food. He told me he had a pepperoni roll for breakfast and pizza for lunch. I have a feeling that isn’t what he had but maybe. We headed off to his music therapy and he was happy to see his friend there for their session.
We got to his vision therapy appointment and he became their door greeter. He loves to tell people “bye bye she’s leaving have a good day.” He had a pretty good session with his incredible doctor. I’m so thankful for the people in our lives who work hard to help us grow. He told her so many things about the stuff that has happened in his life over the last few years. It is amazing how he travels in time backwards and forwards seamlessly to express the things he wants us to know. He talked about her shoes when we first started going to her and went forward to talking about us moving to the woods, getting a purple cow that says moo, and a dog named Frisbee. I always joke with him about purple cows when he purposely calls something the wrong color or if I’m joking with him. I found it funny that he wants one when we move.
The night was a rollercoaster. I pray he sleeps tonight. I changed his bedtime a little because I was doing things around the house and as much as he changes it himself he does not like when I change it on him. He made sure I knew it and the screams and behaviors began. I try not to leave things to the last minute because he gets upset with me moving around the house when he is trying to go to bed but sometimes I just have a few things I need to do. He doesn’t want me making any noise or moving around the house. When you have a small house it is hard to be quiet. I finished quickly and off to bed he went with a few more stomps once I made it to my room.
Each night I pray for calm. Tomorrow is infusion day. He knows I’m going and it could possibly run late so he may be picked up by his grandma. He wants that to happen but it is also so hard for him to handle the possibility that he won’t ride the bus home. It is good for him to have changes in his schedule so he can learn but it is also very hard for him to process it all. I pray there is calm for our day. I loved hearing my big brain sweet baby O tell his stories of days gone by and what our future holds. Your story has only the first chapter written. Let the next chapter be the best one yet. Smiles to all and donut daze!
We were quickly at the crying baby stage of our morning with a side of why are the magical hats gone. I truly wish I could explain to him that manufacturers change their games all the time and they took that game away but it was one of his favorite games and now he asks about it constantly. And I wish the crying babies were at least set to normal speed. It is interesting how he can listen to some things over and over but certain sounds will send him through the roof. He likes the alarm on his tablet but he never wants to hear mine going off. I am always fascinated by how loud he will listen to something but he can still hear noises that are so quiet I’m shocked that he even heard it. He will run from the other room if my phone rings even on the quietest setting.
We got ready for school and headed out to wait for the bus. Without the bus app, it is kind of a guess as to what time they will be there. Generally, they arrive at pretty much the same time but I don’t want them to miss it because he loves it so much. He knows I’m taking him to school tomorrow so I can go to my infusion appointment so I definitely didn’t want him to miss it today.
I picked him up for music therapy and he told me he had a good day at school but still wanted to talk to me about bleeding, spitting, hitting, and kicking. These are all things he loves to talk about but generally never does. The boy era is upon us. I try not to react and my go-to is to distract him but he senses every part of my emotions and wants to talk about it more. I quickly turned to talking about food. He told me he had a pepperoni roll for breakfast and pizza for lunch. I have a feeling that isn’t what he had but maybe. We headed off to his music therapy and he was happy to see his friend there for their session.
We got to his vision therapy appointment and he became their door greeter. He loves to tell people “bye bye she’s leaving have a good day.” He had a pretty good session with his incredible doctor. I’m so thankful for the people in our lives who work hard to help us grow. He told her so many things about the stuff that has happened in his life over the last few years. It is amazing how he travels in time backwards and forwards seamlessly to express the things he wants us to know. He talked about her shoes when we first started going to her and went forward to talking about us moving to the woods, getting a purple cow that says moo, and a dog named Frisbee. I always joke with him about purple cows when he purposely calls something the wrong color or if I’m joking with him. I found it funny that he wants one when we move.
The night was a rollercoaster. I pray he sleeps tonight. I changed his bedtime a little because I was doing things around the house and as much as he changes it himself he does not like when I change it on him. He made sure I knew it and the screams and behaviors began. I try not to leave things to the last minute because he gets upset with me moving around the house when he is trying to go to bed but sometimes I just have a few things I need to do. He doesn’t want me making any noise or moving around the house. When you have a small house it is hard to be quiet. I finished quickly and off to bed he went with a few more stomps once I made it to my room.
Each night I pray for calm. Tomorrow is infusion day. He knows I’m going and it could possibly run late so he may be picked up by his grandma. He wants that to happen but it is also so hard for him to handle the possibility that he won’t ride the bus home. It is good for him to have changes in his schedule so he can learn but it is also very hard for him to process it all. I pray there is calm for our day. I loved hearing my big brain sweet baby O tell his stories of days gone by and what our future holds. Your story has only the first chapter written. Let the next chapter be the best one yet. Smiles to all and donut daze!
RSS Feed