Any and all changes disturb the routine of our lives and for Owen, this is extra hard. Cancelling his therapy this week was a decision I didn’t make lightly but knew that I would be extra tired with my last few days of radiation. However thinking through that decision was why I overthink everything. Owen was up around two wanting to make sure he was still going to school today. I confirmed it but back to bed was not an option because I had to confirm it for the next few hours as well.
I have been working with Owen on his school words and other words he is struggling with. He says “next ear” instead of “next year.” There are a few letters he still struggles with to say the sounds but he has come so incredibly far and I remind myself that the doctors told me he might not talk. I had to believe he would and I made sure he believed it too.
We got ready for the bus and he started naming all his previous bus drivers. He was asking who would be with him over the summer and I told him I wasn’t sure. I got him a couple of new pairs of shoes and even though one of them was blue he will still need time to process them. We went out to wait for the bus and he was so excited when they turned the corner.
When he came home from school I thought it would be the plumbers that were here working on the never-ending plumbing problems but no it was the grey pants that I had on. He hasn’t had a meltdown like this in a very long time. He screamed at me, bit my pants, spit on them, went to the bathroom to get water in his hands to put on me, yelled at the guys to tell me I was wrong, and the list went on. My heart aches.
The guys were here for maybe an hour. I finally got Owen calmed down enough so he wasn’t screaming anymore about twenty minutes before they left. At this point he told me he was sorry many times over. I told him he also needed to tell the guys he was sorry for yelling at them to leave. He told them “Sorry guys” and they were both kind to him.
He was still talking about my grey pants though so I asked him if he wanted to wear shorts. He said yes. I told him that he would not get to wear shorts or a bathing suit if he only wanted everyone in blue pants. I went on to say he would never get to go swimming again if he couldn’t wear a bathing suit. This is when the tide began to turn. He wants to go swimming so not wearing a bathing suit will be a huge deal to him. I’m not sure if it will cure the blue pants thing but just maybe it will get him to realize he has to be kind to others about what they wear so he can wear a bathing suit. At this point, I am grasping at straws to try and help him make connections with it. This has been going on for five years and it hasn’t wavered.
He repeated over and over that his teacher would be happy and his Grandma would be happy that he took deep breaths and calmed down. It is always hard when someone comes to our house for Owen. But it is even harder for me when he is having a meltdown. People at our house disturb his routine and it is hard for him to overcome it. He asked me what they were doing here and when they were coming back all night long.
The night was filled with swimming suit talks, wanting to know when he would see his teacher again, talking about his mentor at school eating a banana, and when he was going to see his best friend again, plus needing to know when the plumbers were coming back. I was thankful he was calm and I pray that he sleeps the whole night through. He told me “My laugh is funny” and did his amazing fake laugh. That’s what life is all about. Focus on the good stuff and the rest will follow. You are amazing and can do anything if you set your mind to it. Smiles to all and donut daze!
I have been working with Owen on his school words and other words he is struggling with. He says “next ear” instead of “next year.” There are a few letters he still struggles with to say the sounds but he has come so incredibly far and I remind myself that the doctors told me he might not talk. I had to believe he would and I made sure he believed it too.
We got ready for the bus and he started naming all his previous bus drivers. He was asking who would be with him over the summer and I told him I wasn’t sure. I got him a couple of new pairs of shoes and even though one of them was blue he will still need time to process them. We went out to wait for the bus and he was so excited when they turned the corner.
When he came home from school I thought it would be the plumbers that were here working on the never-ending plumbing problems but no it was the grey pants that I had on. He hasn’t had a meltdown like this in a very long time. He screamed at me, bit my pants, spit on them, went to the bathroom to get water in his hands to put on me, yelled at the guys to tell me I was wrong, and the list went on. My heart aches.
The guys were here for maybe an hour. I finally got Owen calmed down enough so he wasn’t screaming anymore about twenty minutes before they left. At this point he told me he was sorry many times over. I told him he also needed to tell the guys he was sorry for yelling at them to leave. He told them “Sorry guys” and they were both kind to him.
He was still talking about my grey pants though so I asked him if he wanted to wear shorts. He said yes. I told him that he would not get to wear shorts or a bathing suit if he only wanted everyone in blue pants. I went on to say he would never get to go swimming again if he couldn’t wear a bathing suit. This is when the tide began to turn. He wants to go swimming so not wearing a bathing suit will be a huge deal to him. I’m not sure if it will cure the blue pants thing but just maybe it will get him to realize he has to be kind to others about what they wear so he can wear a bathing suit. At this point, I am grasping at straws to try and help him make connections with it. This has been going on for five years and it hasn’t wavered.
He repeated over and over that his teacher would be happy and his Grandma would be happy that he took deep breaths and calmed down. It is always hard when someone comes to our house for Owen. But it is even harder for me when he is having a meltdown. People at our house disturb his routine and it is hard for him to overcome it. He asked me what they were doing here and when they were coming back all night long.
The night was filled with swimming suit talks, wanting to know when he would see his teacher again, talking about his mentor at school eating a banana, and when he was going to see his best friend again, plus needing to know when the plumbers were coming back. I was thankful he was calm and I pray that he sleeps the whole night through. He told me “My laugh is funny” and did his amazing fake laugh. That’s what life is all about. Focus on the good stuff and the rest will follow. You are amazing and can do anything if you set your mind to it. Smiles to all and donut daze!
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