I got Owen to bed early last. He then slept until four. We had about an hour or so of him talking about how he missed the party on Friday, doesn’t want to go on any more field trips, and wants to have his birthday party at the children’s Therapy Clinic. I’m sure that is so he can see his best friend.
He fell back asleep in my bed and stayed there for hours. He was taking up the whole bed but wanted me right there. He wanted to go to all his favorite places but he truly didn’t have the energy. After a while, he was calmer though still sad and talking about the party he missed yesterday. He said he didn’t want to have a party but kept asking when the next one was. I think he might enjoy a party at school for his birthday. I’ve never tried to do that before because he has always had a hard time with them but maybe we can order pizza or something.
Some days I literally do not want to move because I know it will start a cycle or trigger a moment for him. My heart aches in these moments because he can’t calm down or find a focus. The screaming is hard on both of us and even when the scream is more of an echo it is still there.
“Staying home Sunday cause you are not feeling good,” he said, as he was in the bath talking about all the days ahead. On repeat he said, “stay home Saturday.” He said, “Coughft bless you yumblatz.” His replies when he is sick. He has made some incredible connections and continues to grow in these moments.
One of the hardest things for me to think about is behaviors that are not age-appropriate or that he has cycled back through. This momma’s heart hurts that he doesn’t understand why he can’t do something or shouldn’t do something. When he is sick behaviors that I think are long gone resurface like they never left. The sensory overload he goes through and how everything changes during sickness causes him to go into overdrive.
“Getting ready this Sunday not get ready this Sunday I’m disappointee no church Sunday,” Owen said on repeat mode emphasizing the word disappointed with an E squeal at the end. He went on to say he was having “Bob Evans pancakes and chicken on Sunday” and he was sad he couldn’t go to church until next Sunday to see his people.
I pray for the rain to stop and for us to both sleep tonight. The rain has already caused major flooding in so many places and I am praying for calm waters over the next few days. Owen is ready to hear the timer go off to start his bedtime process. I’m thankful for the connections and the growth he has made. Never give up on the hope for tomorrow. Make each day count. Smiles to all and donut daze!
He fell back asleep in my bed and stayed there for hours. He was taking up the whole bed but wanted me right there. He wanted to go to all his favorite places but he truly didn’t have the energy. After a while, he was calmer though still sad and talking about the party he missed yesterday. He said he didn’t want to have a party but kept asking when the next one was. I think he might enjoy a party at school for his birthday. I’ve never tried to do that before because he has always had a hard time with them but maybe we can order pizza or something.
Some days I literally do not want to move because I know it will start a cycle or trigger a moment for him. My heart aches in these moments because he can’t calm down or find a focus. The screaming is hard on both of us and even when the scream is more of an echo it is still there.
“Staying home Sunday cause you are not feeling good,” he said, as he was in the bath talking about all the days ahead. On repeat he said, “stay home Saturday.” He said, “Coughft bless you yumblatz.” His replies when he is sick. He has made some incredible connections and continues to grow in these moments.
One of the hardest things for me to think about is behaviors that are not age-appropriate or that he has cycled back through. This momma’s heart hurts that he doesn’t understand why he can’t do something or shouldn’t do something. When he is sick behaviors that I think are long gone resurface like they never left. The sensory overload he goes through and how everything changes during sickness causes him to go into overdrive.
“Getting ready this Sunday not get ready this Sunday I’m disappointee no church Sunday,” Owen said on repeat mode emphasizing the word disappointed with an E squeal at the end. He went on to say he was having “Bob Evans pancakes and chicken on Sunday” and he was sad he couldn’t go to church until next Sunday to see his people.
I pray for the rain to stop and for us to both sleep tonight. The rain has already caused major flooding in so many places and I am praying for calm waters over the next few days. Owen is ready to hear the timer go off to start his bedtime process. I’m thankful for the connections and the growth he has made. Never give up on the hope for tomorrow. Make each day count. Smiles to all and donut daze!
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