Maybe it’s time to change my clocks or adjust Owen to a later bedtime. He’s getting older but he still seems to need more sleep when he does sleep through the night. The times he does wake up early it is because he has so much on his mind which seems to be a lot lately. The good news is was up at four waiting for him to come to my room.
His morning was filled with anxiousness for blue pants. I wish I had the magic words to shift his focus or that it at least wouldn’t be so hard on him. I try to prepare him that people will not be in blue pants but it is not something he can be distracted from right now. We are working with all of his team to try to find something that helps him.
I put black jeans on him and he was immediately heading into a meltdown. I tried to distract him and talked to him about his day but he was not having anything to do with the black jeans. I gave him his blue sweatpants and told him he could change but he had to be ready in five minutes. It took him a couple of tries but he did it and put his shoes on the right feet.
I showed him how to fix his pockets but he didn’t understand to stick his hands in them to push them inside his pants. He put them on backward the first time because he didn’t check to see where the tag was for the back. When I lay his clothes out for him he still picks them up and will turn them the wrong way. He will even grab them from the leg and try to put them on upside down.
He was very excited to once again get on the bus. He knew I would be picking him up from school to go to his therapy. I talked to him all the way there about his therapists not wearing blue pants and that his expectations were not going to be met. I keep trying different ways for him to make these connections.
We were sitting out in the parking lot and he saw one of his therapists. She was not wearing blue pants or anything he thought. He immediately started crying. My heart aches for the rollercoaster ride he is on. He recovered mostly with his first therapist she told me but it was still too much with his second one. We are going to take next week off but I talked about it with one of his therapists and we both know this isn’t the solution because he doesn’t stop thinking about it with anyone. The crying breaks my heart so I’m hoping that by taking the week off maybe there are more things we can work through. Just praying he finds peace with it. When we got home he said, “Like a baby I cried” so I know he is making the connection he just doesn’t know how to process how to handle it all.
Tomorrow I go for pre-admission testing and a few other procedures. Owen told me today to finish my medicine so we could go swimming again. I’m so proud of the connections he is making and the understanding he has with all of this.
He was calmer throughout the night. I gave him extra time after his bath hoping that if he stayed up a little later it may help him stay asleep longer. It didn’t take him long to fall asleep and I know he was exhausted from all of his emotions. I pray for a good night’s sleep and a great day for my sweet baby O tomorrow. He is doing amazing and I know he’s going to change the world. Be the change you want to see in the world and you will be the inspiration to follow. Smiles to all and donut daze!
His morning was filled with anxiousness for blue pants. I wish I had the magic words to shift his focus or that it at least wouldn’t be so hard on him. I try to prepare him that people will not be in blue pants but it is not something he can be distracted from right now. We are working with all of his team to try to find something that helps him.
I put black jeans on him and he was immediately heading into a meltdown. I tried to distract him and talked to him about his day but he was not having anything to do with the black jeans. I gave him his blue sweatpants and told him he could change but he had to be ready in five minutes. It took him a couple of tries but he did it and put his shoes on the right feet.
I showed him how to fix his pockets but he didn’t understand to stick his hands in them to push them inside his pants. He put them on backward the first time because he didn’t check to see where the tag was for the back. When I lay his clothes out for him he still picks them up and will turn them the wrong way. He will even grab them from the leg and try to put them on upside down.
He was very excited to once again get on the bus. He knew I would be picking him up from school to go to his therapy. I talked to him all the way there about his therapists not wearing blue pants and that his expectations were not going to be met. I keep trying different ways for him to make these connections.
We were sitting out in the parking lot and he saw one of his therapists. She was not wearing blue pants or anything he thought. He immediately started crying. My heart aches for the rollercoaster ride he is on. He recovered mostly with his first therapist she told me but it was still too much with his second one. We are going to take next week off but I talked about it with one of his therapists and we both know this isn’t the solution because he doesn’t stop thinking about it with anyone. The crying breaks my heart so I’m hoping that by taking the week off maybe there are more things we can work through. Just praying he finds peace with it. When we got home he said, “Like a baby I cried” so I know he is making the connection he just doesn’t know how to process how to handle it all.
Tomorrow I go for pre-admission testing and a few other procedures. Owen told me today to finish my medicine so we could go swimming again. I’m so proud of the connections he is making and the understanding he has with all of this.
He was calmer throughout the night. I gave him extra time after his bath hoping that if he stayed up a little later it may help him stay asleep longer. It didn’t take him long to fall asleep and I know he was exhausted from all of his emotions. I pray for a good night’s sleep and a great day for my sweet baby O tomorrow. He is doing amazing and I know he’s going to change the world. Be the change you want to see in the world and you will be the inspiration to follow. Smiles to all and donut daze!
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