It was a little more of a party night for us. Well more for me. I woke up several times to go to the bathroom. The nights after my infusions are always interesting. Thankfully, I was feeling pretty good. The supplements helped a lot. Owen woke up about 4:30 but was mostly calm and I was already awake. Repeat mode for how all his vacations, holidays, and school years are going to go, mixed with who moved, when we are seeing everyone again, and if the bus was going to take him to school, and if his “grandmother” was picking him up. He was happy though.
I wish he could learn to be excited about the moment he is in and instead look forward to his future days but not worry about them. I don’t think that his knowing his schedule is helping. He talked all morning about his dentist appointment in November and seeing his pediatrician for his well check in February. He told me what they all would be wearing and that if he went at the right time his dentist's office would be wearing pajamas. He knew his pediatrician wore “dark dark dark blue it’s black” because that was the way he was able to handle that she was wearing black jeans one of the times he saw her. His brain holds onto every single detail. It is a wild ride hearing him recite every detail of the life we’ve led.
We got ready to go and wait for the bus. I got us outside early because the bus app got stuck once again and I knew the bus was still heading our way. He listed all his friends on the bus he was excited to see them. I love his enthusiasm for the people in his life. It makes me happy to see how much he enjoys his days that go exactly how he needs them to go. When the bus turned the corner he asked me his questions and off to his happy place he went.
Waiting for Owen to get off the bus is always a mixture of joy and anxiousness. I wonder if my outfit, hair, or the way I’m standing will be a problem for him. I hope instead he gets off the bus with enthusiasm and wants to tell me about his day. I pray for these moments. I want them to go smoothly. I want him to be happy. And I want to be happy.
When he got home he came off the bus with a mission and that mission was staying home. He told me I was not wearing the gold dress and I told him I was wearing exactly what I was wearing when he left this morning. I think he has tunnel vision in the mornings even though he talks about what I am wearing. Once he got that out of the way I got a big hug and he talked about the bus and his people.
We came inside and he was happy I had gotten him ranch veggie straws. I talked to him about his day but he was not very interested in sharing too many correct details. He told me they made s’mores and talked about when his “grandmother” was coming to pick him up. Then he told me you do not shake the dot markers. I love how he is saying grandmother now when he is talking about her doing things like picking him up.
The night went pretty quickly and thankfully he was calm about most things. He is very much looking forward to his therapy tomorrow. I have a feeling he might want a mushroom pizza since we didn’t have one on Monday. He is ready for the big yellow bus to come pick him up tomorrow. I pray we both sleep tonight. We said our prayers tonight and I kissed him good night. I walked out of his room and said, “Goodnight sweet boy I love you” and he said, “I love you, mommy.” I am so proud of his progress. Be thankful in the moments of chaos because they can be beautiful too. Smiles to all and donut daze!
I wish he could learn to be excited about the moment he is in and instead look forward to his future days but not worry about them. I don’t think that his knowing his schedule is helping. He talked all morning about his dentist appointment in November and seeing his pediatrician for his well check in February. He told me what they all would be wearing and that if he went at the right time his dentist's office would be wearing pajamas. He knew his pediatrician wore “dark dark dark blue it’s black” because that was the way he was able to handle that she was wearing black jeans one of the times he saw her. His brain holds onto every single detail. It is a wild ride hearing him recite every detail of the life we’ve led.
We got ready to go and wait for the bus. I got us outside early because the bus app got stuck once again and I knew the bus was still heading our way. He listed all his friends on the bus he was excited to see them. I love his enthusiasm for the people in his life. It makes me happy to see how much he enjoys his days that go exactly how he needs them to go. When the bus turned the corner he asked me his questions and off to his happy place he went.
Waiting for Owen to get off the bus is always a mixture of joy and anxiousness. I wonder if my outfit, hair, or the way I’m standing will be a problem for him. I hope instead he gets off the bus with enthusiasm and wants to tell me about his day. I pray for these moments. I want them to go smoothly. I want him to be happy. And I want to be happy.
When he got home he came off the bus with a mission and that mission was staying home. He told me I was not wearing the gold dress and I told him I was wearing exactly what I was wearing when he left this morning. I think he has tunnel vision in the mornings even though he talks about what I am wearing. Once he got that out of the way I got a big hug and he talked about the bus and his people.
We came inside and he was happy I had gotten him ranch veggie straws. I talked to him about his day but he was not very interested in sharing too many correct details. He told me they made s’mores and talked about when his “grandmother” was coming to pick him up. Then he told me you do not shake the dot markers. I love how he is saying grandmother now when he is talking about her doing things like picking him up.
The night went pretty quickly and thankfully he was calm about most things. He is very much looking forward to his therapy tomorrow. I have a feeling he might want a mushroom pizza since we didn’t have one on Monday. He is ready for the big yellow bus to come pick him up tomorrow. I pray we both sleep tonight. We said our prayers tonight and I kissed him good night. I walked out of his room and said, “Goodnight sweet boy I love you” and he said, “I love you, mommy.” I am so proud of his progress. Be thankful in the moments of chaos because they can be beautiful too. Smiles to all and donut daze!
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