I slept much better last night even though I woke up a couple of times. Owen heard me and once again declared he “slept all night.” I had tried to be quiet but it was well after five so I figured he would be up soon.
He was in a great mood. He wanted to talk about his days ahead. He was super excited about trunk or treat today and he kept asking for his grandma to take him to music therapy tomorrow. The boy was on a mission. I told him yesterday that we wouldn’t see his friend when we went to the event. They weren’t going to be able to come until later in the day. By then the crowd would be too hard for Owen so hopefully, we will be able to go to the park with them soon.
They had given me the full chemo infusion during my last treatment. In general, I’m feeling pretty good but my stomach is randomly rebelling when I least expect it. Owen has been talking about my hair and how I look like a baby. He will rub my head and tell me that I need my medicine to get better. He reminds me to take it in my “medicine box” and has been very calm about all of it. He said again that my hair will grow back in February. I’m not sure how he decided that month but I’m holding it close to my heart. God’s hands are wrapped around us and I see it every day in our lives.
We left for church and Owen talked about his friend all the way there. He is hoping he can come one day so he can ride on the elevator with him to his class. As we walked through the lobby he started trying to recruit people to ride down on the elevator with him. He got a couple of people to go with us and off to his class we went. After church, we came home to eat lunch before we went back for the trunk or treat.
He listened so well as we got ready to go to the event. We got there very early because I like to give him time to process it all. We walked down by the fire pit and that was very calming for him. He immediately went to “lay down lay down” on the top of the table. We sat there for a few minutes and then the two teenagers that were going to walk Owen around came to meet with us.
I told them several things that he liked to do but he may be too overwhelmed to do them and want to just look. He doesn’t eat very many sweets so going to all the cars was not something that would interest him. They headed back to the inflatables and I told them he would be ready to leave within about 45 minutes. If he stays too much longer it becomes harder for him to cope and it’s all too much. They brought him back when he asked for me. They were great with him and even walked us to our car.
He was so happy when we got home and he was extremely calm all night. I’m thankful for a good day and the people that love my son. Accept each other for being an amazing, different, unique individual, and love with all your heart. Smiles to all and donut daze!
He was in a great mood. He wanted to talk about his days ahead. He was super excited about trunk or treat today and he kept asking for his grandma to take him to music therapy tomorrow. The boy was on a mission. I told him yesterday that we wouldn’t see his friend when we went to the event. They weren’t going to be able to come until later in the day. By then the crowd would be too hard for Owen so hopefully, we will be able to go to the park with them soon.
They had given me the full chemo infusion during my last treatment. In general, I’m feeling pretty good but my stomach is randomly rebelling when I least expect it. Owen has been talking about my hair and how I look like a baby. He will rub my head and tell me that I need my medicine to get better. He reminds me to take it in my “medicine box” and has been very calm about all of it. He said again that my hair will grow back in February. I’m not sure how he decided that month but I’m holding it close to my heart. God’s hands are wrapped around us and I see it every day in our lives.
We left for church and Owen talked about his friend all the way there. He is hoping he can come one day so he can ride on the elevator with him to his class. As we walked through the lobby he started trying to recruit people to ride down on the elevator with him. He got a couple of people to go with us and off to his class we went. After church, we came home to eat lunch before we went back for the trunk or treat.
He listened so well as we got ready to go to the event. We got there very early because I like to give him time to process it all. We walked down by the fire pit and that was very calming for him. He immediately went to “lay down lay down” on the top of the table. We sat there for a few minutes and then the two teenagers that were going to walk Owen around came to meet with us.
I told them several things that he liked to do but he may be too overwhelmed to do them and want to just look. He doesn’t eat very many sweets so going to all the cars was not something that would interest him. They headed back to the inflatables and I told them he would be ready to leave within about 45 minutes. If he stays too much longer it becomes harder for him to cope and it’s all too much. They brought him back when he asked for me. They were great with him and even walked us to our car.
He was so happy when we got home and he was extremely calm all night. I’m thankful for a good day and the people that love my son. Accept each other for being an amazing, different, unique individual, and love with all your heart. Smiles to all and donut daze!
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