I didn’t tell Owen yesterday what we were doing today and I made a teeny tiny little mistake when we woke up. I suppose it was a good and bad decision. It was pretty much a successful night. He woke a little before five but I said the magic words as he was getting ready to go into full-blown screaming mode. I told him he was going to our friends’ house and that stopped him in his tracks. I told him he had to go back to bed until “five oh oh” and he went. He came back a few minutes before five and I told him three more minutes since we were already winning the day. He did it and then I had one very excited boy that couldn’t wait to leave our house.
He was running through the house yelling our friends’ names. He couldn’t wait to go to their house. I explained to him that it was still hours away before we were going to meet them at the cancer center but he came to check with me every few moments to see when we were heading to the “camping center.” I tried to get him to understand it would be a while but when you are excited you are excited and nothing is going to change that.
When it was finally time to go to the “camping center” he couldn’t stop talking about our friends and what they would do today. He loves going to spend time with “his people.” He has told me all the people and places he wants to go see. He is quite the planner but sometimes it is the follow-through that doesn’t always happen. I am trying to plan events that he will enjoy and hopefully follow through with.
We got to the cancer center and he was off to enjoy his day. I had my lab work first and then my infusion. It took a little bit to get the bloodwork done because I think the heat had caused me some dehydration but she was able to get it done with a few little tricks. I was thankful that my bloodwork came back fine. My blood pressure was a little low but all my other levels that had been low before were doing good so I was able to have my normal infusion.
When I was done our friend brought Owen back to me. He mostly was happy on the way home but he wanted to make sure he got his point across by yelling at me. He wanted to make sure we drove by the “blue church.” I kept asking him to tell me about his day and what they did. He kept asking when he would see our friends again. I was thankful he enjoyed his day.
The night was full of laughter with a huge side of mischief and doing everything to try and act up but I kept leaning into the moments instead of saying anything about my own emotions. He wants me to be grossed out by looking at some of the dental and eyeball videos. He was not happy when I kept saying bring it to me. This is where the fine line is. When he gets his way of showing me things he knows I don’t want to see he finds it hilarious and will do it over and over again. If I say show it to me then after so many attempts to upset me he becomes highly agitated and the screaming begins. Walking that fine line can be extremely hard. And distracting him takes every bit of effort I have to even remotely redirect him. He is a genius on top of all the other things so one genius trying to top another is always quite interesting.
We have planned to not go anywhere tomorrow. Generally, the day after my infusions are pretty exhausting and we have several very busy days ahead. We have talked a lot about it so I hope that he will sleep through the night and so will I. After the great discussion of honey mustard in his hair and the removal of said honey mustard it was finally bedtime. His laughter makes my day and I’m thankful for that amazing gift. Today is the first day of the rest of your life. Let that be your motivation for a better tomorrow and make all your dreams come true. Smiles to all and donut daze!
He was running through the house yelling our friends’ names. He couldn’t wait to go to their house. I explained to him that it was still hours away before we were going to meet them at the cancer center but he came to check with me every few moments to see when we were heading to the “camping center.” I tried to get him to understand it would be a while but when you are excited you are excited and nothing is going to change that.
When it was finally time to go to the “camping center” he couldn’t stop talking about our friends and what they would do today. He loves going to spend time with “his people.” He has told me all the people and places he wants to go see. He is quite the planner but sometimes it is the follow-through that doesn’t always happen. I am trying to plan events that he will enjoy and hopefully follow through with.
We got to the cancer center and he was off to enjoy his day. I had my lab work first and then my infusion. It took a little bit to get the bloodwork done because I think the heat had caused me some dehydration but she was able to get it done with a few little tricks. I was thankful that my bloodwork came back fine. My blood pressure was a little low but all my other levels that had been low before were doing good so I was able to have my normal infusion.
When I was done our friend brought Owen back to me. He mostly was happy on the way home but he wanted to make sure he got his point across by yelling at me. He wanted to make sure we drove by the “blue church.” I kept asking him to tell me about his day and what they did. He kept asking when he would see our friends again. I was thankful he enjoyed his day.
The night was full of laughter with a huge side of mischief and doing everything to try and act up but I kept leaning into the moments instead of saying anything about my own emotions. He wants me to be grossed out by looking at some of the dental and eyeball videos. He was not happy when I kept saying bring it to me. This is where the fine line is. When he gets his way of showing me things he knows I don’t want to see he finds it hilarious and will do it over and over again. If I say show it to me then after so many attempts to upset me he becomes highly agitated and the screaming begins. Walking that fine line can be extremely hard. And distracting him takes every bit of effort I have to even remotely redirect him. He is a genius on top of all the other things so one genius trying to top another is always quite interesting.
We have planned to not go anywhere tomorrow. Generally, the day after my infusions are pretty exhausting and we have several very busy days ahead. We have talked a lot about it so I hope that he will sleep through the night and so will I. After the great discussion of honey mustard in his hair and the removal of said honey mustard it was finally bedtime. His laughter makes my day and I’m thankful for that amazing gift. Today is the first day of the rest of your life. Let that be your motivation for a better tomorrow and make all your dreams come true. Smiles to all and donut daze!
RSS Feed