I knew my day was going to be rough when I woke up for the second time before midnight. By two in the morning, I was up many more times and I could feel my headache getting bigger. My stomach was not happy and I knew it was going to be a rough day. It was right on time like all the other ones but hopefully this one won’t be as hard as the last one. I kept thinking how blessed I was though because I wasn’t having a lot of the other symptoms like I did for the previous one.
Owen woke up at 4:30 right as I was finally falling back asleep. He wanted his tablet and I should have given it to him but I was trying to stick to the “five oh oh” timeframe. For the next thirty minutes, he came back five times. Truly it was not worth it but I stuck with it.
Noise was not my friend and Owen thinks it is funny when I tell him to turn down his tablet. When my head was pounding that made my stomach worse and then he was playing his tablet so loud. He played the one song over and over and over. He wouldn’t turn it off and instead turned it louder and laughed. He finds it funny when I don’t feel well because he doesn’t know how to process it and laughing is how he gets through those moments.
Thankfully my medicine finally started working and I was feeling much better. His Saturday was going to be in full swing because he was so happy to be going to see his grandma. We got ready and off we went. I try to focus my nerves of steel instead of my nerves of spaghetti. He yells out constantly now “Pay attention” and then he tells me every car that changed lanes, stopped in front of us, or did something he didn’t feel was right and he is pretty much correct every time. The thing is he doesn’t forget any of those good or bad drivers and reminds me of them when we are sitting at home doing something completely different.
He enjoyed his time with his grandma and then she drove him home via the “blue church” the requested four times. When she dropped him off he wanted a video of her leaving. Oh, how the world has changed for him to want pictures and videos now. It is amazing. He has only recently wanted to even look at pictures or videos of people he knows and now he requests them from everyone. He couldn’t wait for me to send it to his tablet so he could open it to the main screen but not watch it. This will take him days before he will watch it if he ever does.
The mind of my genius is constantly going. When I was taking him to therapy the other day I told him I would take him to the statue. He really likes to see. However, when I was driving, I got in the wrong lane because I thought I needed to turn instead of going under the bridge. I explained to him I wasn’t thinking about where I was and that I made a mistake. Since then he has reminded me of this many days. Today he said, “Burger boy is working mommy made a mistake you put turn signal wrong way you made a mistake” and continued to explain how I made a big mistake. He truly does not forget anything he does not want to forget.
He told me earlier to concentrate on the dogs. I have no clue why he said it but he just randomly told me that. I told him that we were going to move to the woods when I found some property and then we could get dogs or other animals if he wanted to. I also joke with him about purple cows and now he wants to move to property that has purple cows.
“Talk about be so loud the bump,” he said. Anytime he says this or he makes this melodic song. I know it is about to get very loud. He starts screaming louder, and everything is funny to him. I’m not quite sure where the statement or where the humming song came from, but it is something he has done for years and I brace for the noise.
“Uncle Wichard is gone give him one more time,” he said. He asked me about my brother all the time and when he’s coming back, he will then say that he died, but how do I explain that? he wants him to come visit him. I pray for some kind of understanding for him or a way for me to explain it better but each day is a memory of somebody Owen wants back in his life.
I pray we both sleep tonight and get to go to church tomorrow. I’m thankful for a great support system and that Owen loves going. I’m glad that my headache is gone and I pray that my stomach will rest tonight. I hang on to the progress that Owen is making and I know that these connections will come. Each day is a gift. Bedtime did not go as smoothly but thankfully, he fell asleep quickly. Never give up on the hope for tomorrow and always count your blessings. Smiles to all and donut daze!
Owen woke up at 4:30 right as I was finally falling back asleep. He wanted his tablet and I should have given it to him but I was trying to stick to the “five oh oh” timeframe. For the next thirty minutes, he came back five times. Truly it was not worth it but I stuck with it.
Noise was not my friend and Owen thinks it is funny when I tell him to turn down his tablet. When my head was pounding that made my stomach worse and then he was playing his tablet so loud. He played the one song over and over and over. He wouldn’t turn it off and instead turned it louder and laughed. He finds it funny when I don’t feel well because he doesn’t know how to process it and laughing is how he gets through those moments.
Thankfully my medicine finally started working and I was feeling much better. His Saturday was going to be in full swing because he was so happy to be going to see his grandma. We got ready and off we went. I try to focus my nerves of steel instead of my nerves of spaghetti. He yells out constantly now “Pay attention” and then he tells me every car that changed lanes, stopped in front of us, or did something he didn’t feel was right and he is pretty much correct every time. The thing is he doesn’t forget any of those good or bad drivers and reminds me of them when we are sitting at home doing something completely different.
He enjoyed his time with his grandma and then she drove him home via the “blue church” the requested four times. When she dropped him off he wanted a video of her leaving. Oh, how the world has changed for him to want pictures and videos now. It is amazing. He has only recently wanted to even look at pictures or videos of people he knows and now he requests them from everyone. He couldn’t wait for me to send it to his tablet so he could open it to the main screen but not watch it. This will take him days before he will watch it if he ever does.
The mind of my genius is constantly going. When I was taking him to therapy the other day I told him I would take him to the statue. He really likes to see. However, when I was driving, I got in the wrong lane because I thought I needed to turn instead of going under the bridge. I explained to him I wasn’t thinking about where I was and that I made a mistake. Since then he has reminded me of this many days. Today he said, “Burger boy is working mommy made a mistake you put turn signal wrong way you made a mistake” and continued to explain how I made a big mistake. He truly does not forget anything he does not want to forget.
He told me earlier to concentrate on the dogs. I have no clue why he said it but he just randomly told me that. I told him that we were going to move to the woods when I found some property and then we could get dogs or other animals if he wanted to. I also joke with him about purple cows and now he wants to move to property that has purple cows.
“Talk about be so loud the bump,” he said. Anytime he says this or he makes this melodic song. I know it is about to get very loud. He starts screaming louder, and everything is funny to him. I’m not quite sure where the statement or where the humming song came from, but it is something he has done for years and I brace for the noise.
“Uncle Wichard is gone give him one more time,” he said. He asked me about my brother all the time and when he’s coming back, he will then say that he died, but how do I explain that? he wants him to come visit him. I pray for some kind of understanding for him or a way for me to explain it better but each day is a memory of somebody Owen wants back in his life.
I pray we both sleep tonight and get to go to church tomorrow. I’m thankful for a great support system and that Owen loves going. I’m glad that my headache is gone and I pray that my stomach will rest tonight. I hang on to the progress that Owen is making and I know that these connections will come. Each day is a gift. Bedtime did not go as smoothly but thankfully, he fell asleep quickly. Never give up on the hope for tomorrow and always count your blessings. Smiles to all and donut daze!
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