I fell asleep early but woke up about three and that was that. My body seems to still be processing the radiation and I had my first infusion yesterday so I was up several times for that as well. Owen slept until almost six. He woke up happy but he wanted to make sure I was not making him miss the bus again.
“In an ear,” he said. I reached up to his ears, tickling them slightly, and I said, “These are ears.” He said, “In a year” and started laughing hysterically. I think this is his new go-to phrase so he can spend time with me going through year and ear with him even though he knows it. It is like “two days” versus “today.” He will say these to me trying to figure them out as well. His mind is so amazing how he goes through the words and connections.
I don’t talk a lot about the broken things but they are all around our house. It’s hard to talk about. This is my baby and I will watch him run to the couch and bite it one more time. My heart explodes for all the sensory moments he goes through where he has to let those emotions and feelings out. He kicks the leg of the table when he sits there eating dinner. I’ve had to tighten the screws so many times to even keep it attached. I think it is our third or fourth table. The list goes on. None of it is things that he is doing out of anger or even realizes he is doing anything wrong but trying to teach him to use his energy in other ways like on his trampoline or biting one of his sensory toys is a constant battle because it’s quicker to drive head first into the couch and bite the cushion. With that being said what he does now is minor compared to how many things he broke in the earlier years.
He got home and he was questioning all his days ahead, he is making sure he is going to therapy tomorrow. I told him he was going. All our schedule changes for many reasons have made him question everything a lot more and I understand it has been hard on him because his schedule has been changed.
He told me he was disappointed in me that I didn’t tell him our friend was coming to pick him up yesterday. He went on to say he was happy and went to “wait for mommy medicine to be done so my hair will grow” and we could go swimming again. Then he said he was cranky so he had to go to our friend’s house. He is becoming quite the conversationalist and explainer.
I didn’t tell him yesterday because I wasn’t sure if my appointment would get canceled and I didn’t want it to be harder on him if his plans got changed once he knew our friend was coming but I think he is starting to understand plans can change and he might like the outcome. Maybe next I will try something like our friend might be picking you up from school today if mommy’s appointment doesn’t get canceled. We will see. Too much information too soon gets us in circles as well.
He was going on about his therapists’ clothes. I said you have to remember that you want to go swimming. He stopped and said, “You have to be kind to everybody.” Hopefully reminding him about his “swimming suit” will keep working when he is thinking about blue pants. He asked me about my mom’s “string pants” I said she would never wear them again and she could wear all kinds of pants. He started saying things and I said “Swimming suit” and walked away to get his snack. He stopped asking about it so it’s huge progress.
After his bath he wanted to sit with me on the “white bed” and he wrapped his arm under my arm while he played with his tablet. He sat there for a while and then he took his fingers up to my chin making the funny faces on me like I have done on him. It was the first time he had ever done this. My heart was full with all his giggles. Today in the month of April I celebrated “Owen’s Awesome Awareness.” There is no book cover that matches the story so make sure to show kindness and grace to everyone. Love the world and it will love you back. Smiles to all and donut daze!
“In an ear,” he said. I reached up to his ears, tickling them slightly, and I said, “These are ears.” He said, “In a year” and started laughing hysterically. I think this is his new go-to phrase so he can spend time with me going through year and ear with him even though he knows it. It is like “two days” versus “today.” He will say these to me trying to figure them out as well. His mind is so amazing how he goes through the words and connections.
I don’t talk a lot about the broken things but they are all around our house. It’s hard to talk about. This is my baby and I will watch him run to the couch and bite it one more time. My heart explodes for all the sensory moments he goes through where he has to let those emotions and feelings out. He kicks the leg of the table when he sits there eating dinner. I’ve had to tighten the screws so many times to even keep it attached. I think it is our third or fourth table. The list goes on. None of it is things that he is doing out of anger or even realizes he is doing anything wrong but trying to teach him to use his energy in other ways like on his trampoline or biting one of his sensory toys is a constant battle because it’s quicker to drive head first into the couch and bite the cushion. With that being said what he does now is minor compared to how many things he broke in the earlier years.
He got home and he was questioning all his days ahead, he is making sure he is going to therapy tomorrow. I told him he was going. All our schedule changes for many reasons have made him question everything a lot more and I understand it has been hard on him because his schedule has been changed.
He told me he was disappointed in me that I didn’t tell him our friend was coming to pick him up yesterday. He went on to say he was happy and went to “wait for mommy medicine to be done so my hair will grow” and we could go swimming again. Then he said he was cranky so he had to go to our friend’s house. He is becoming quite the conversationalist and explainer.
I didn’t tell him yesterday because I wasn’t sure if my appointment would get canceled and I didn’t want it to be harder on him if his plans got changed once he knew our friend was coming but I think he is starting to understand plans can change and he might like the outcome. Maybe next I will try something like our friend might be picking you up from school today if mommy’s appointment doesn’t get canceled. We will see. Too much information too soon gets us in circles as well.
He was going on about his therapists’ clothes. I said you have to remember that you want to go swimming. He stopped and said, “You have to be kind to everybody.” Hopefully reminding him about his “swimming suit” will keep working when he is thinking about blue pants. He asked me about my mom’s “string pants” I said she would never wear them again and she could wear all kinds of pants. He started saying things and I said “Swimming suit” and walked away to get his snack. He stopped asking about it so it’s huge progress.
After his bath he wanted to sit with me on the “white bed” and he wrapped his arm under my arm while he played with his tablet. He sat there for a while and then he took his fingers up to my chin making the funny faces on me like I have done on him. It was the first time he had ever done this. My heart was full with all his giggles. Today in the month of April I celebrated “Owen’s Awesome Awareness.” There is no book cover that matches the story so make sure to show kindness and grace to everyone. Love the world and it will love you back. Smiles to all and donut daze!
RSS Feed