He understands the months of the year. He can say them forwards and backwards but that still doesn’t stop him from wanting to be a time traveler or at least to know about the future. He is very much stuck on the fact that he wants to make sure he will see his teacher in August, if the aide will be wearing blue pants tomorrow and in August, plus he wants to make sure his best friend will be at the “middle school new school” in August. He has got it all covered. The questions about August didn’t stop all night long. I remind him we are only in December and then this brings on the questions about summer school.
He was on high sensory alert and once again wanted me to sit. I wasn’t complaining because I was pretty tired. My focus was keeping him calm and hoping that would help him with not repeating everything so much.
I told him it was time to get ready and he immediately started telling me what I was going to wear and I told him what I was not going to wear. I had a meeting I was going to and was not wearing jeans. This sent him into overdrive. He then wanted me to wear a dress or camo pants and I told him I was wearing different pants. I had to refocus him several times and tell him to move on from it. It was not easy to distract him but it wasn’t much longer until we went outside.
We crossed the street and he started jumping up and down when he saw the bus coming down the road. I always tell the bus drivers if they are ever having a bad day to remember how much they mean to these kids and their families. I know how much Owen loves riding the bus and I know how thankful I am that they take such good care of him.
When he came home from school the aide told me he was very quiet on the bus. He usually tells them how to drive. When he got off the bus I could hear him telling the aide that I was wearing the wrong pants. Thankfully he was able to push through it because we had to put his stuff up and go meet a friend to pick up something from her. He handled it like a champ. I asked him if he wanted to go see Santa and he said that he wanted to go home so we went back home.
His focus returned back to August once I changed out of the wrong pants. I try to remind him he has all of this stored in his brain but he has to repeat it over and over. My brain gets tired of trying to remember all the things he is even talking about. Plus, he talks me into a corner sometimes. He will say the same thing ten times and then say the opposite. He then gets mad when I don’t answer him or answer incorrectly. I breathe. When your child is brilliant but doesn’t always know how to express themselves it is hard to keep them focused and moving forward. I tell Owen all the time that he is amazing and can talk about anything he wants because he never forgets a thing.
I started singing and he started screaming. I know my singing isn’t the best but he can’t handle me singing unless he requests it. It is a complete sensory thing for him. It’s like the lights or other sounds. If he hears certain noises coming from outside it will send him into a meltdown in a matter of seconds. Bells and sirens that go off at the wrong time also are too much for him and the screaming begins. I am on pins and needles sometimes because I never know what sound will set him off. If I hear a noise I always pray that he doesn’t hear it.
Bedtime did not go smoothly. He did great in the bath and then he came to sit with me so we could watch his movie. When it was bedtime he went to bed but then got up to talk about seeing his therapists tomorrow and back to August. I finally convinced him to go back to bed and I pray he sleeps all night. He may not have let me sing but I sure loved hearing him sing. I’m thankful for his singing and that brings me so much joy. Take time for yourself and find peace in your heart. Smiles to all and donut daze!