Once he got up we had about an hour before we had to get ready to go. He asked me a lot of questions about his day but he was very calm about it. He remained calm but my mind tires when he repeatedly asked me the same question. If I ignore him for too long or try to refocus him it doesn’t always work. I know it is serious when he says, “Yes mommy” and keeps repeating that. At this point, if I don’t answer the way he wants me to he will have a meltdown and it is hard to get him back on track sometimes. I’m thankful when he stays focused and calm.
He wanted to meet his grandma instead of me taking him to her but I told him it was very cold so I was going to take him. He then decided that he wanted her to meet me after my appointment. I told him that it was up to grandma. He likes it when she takes him on rides. He wants her to take him to see the burger boy statue and drive by the railroad tracks. She agreed to take him by the railroad tracks since he behaved with her. They agreed on how many times they were gonna go around the block and wrote it all down so he would know. When he gets something in his mind and it doesn’t go according to plan he gets very upset so setting the rules beforehand helps him as the day goes on.
I try to remember not to say anything unless it is actually happening. Sometimes I will tell him things that I think are happening and if it doesn’t happen then he gets upset because of his expectations. It’s hard to explain to him. Life happens when you have something else planned.
I met them after their ride and we came home to eat our lunch. We had a pretty quiet rest of our day and then he sat with me before bedtime. He started talking to me about different things that were happening and what he wanted to do over the next week. He knew school started back on the 6th so he told me church was on the 5th and his therapy was on the “2ndth.” I loved how he was able to go backward with the dates and figure out what he would be doing on those days.
He handled bedtime like a champ tonight and it didn’t take him long to fall quickly asleep. Even though we had a couple of moments when he wanted all of his tablets at the same time and wouldn’t take no for an answer, I’m thankful for another good day. I pray for a great night of sleep and I’m excited about going to church for their Christmas Eve service. I have a lot to celebrate this year and I’m very thankful for being cancer-free. That was the best Christmas present I could ever ask for. Celebrate your victories no matter how big or small they are celebrate them all. Know that you are incredible and can do anything you set your mind to. Smiles to all and donut daze!