I woke early, didn’t turn any of the lights on, managed to go to the bathroom, and start my coffee before Owen woke. I was hoping he would keep sleeping so I would have a couple of hours to just sit, but instead, it was time to start our day. He woke probably because I was not being as quiet as I thought I was, but every noise is a noise to him. We sat in the dark for a while though. Him in my arms, hugging my neck, trying to bite my hair. It’s a sensory thing for him. He does this a lot. Although this is one of those things that has kind of circled around. He stopped doing it as much, but I think with the anxiousness of our days he is wanting more sensory input. And that followed us through our day. He wanted me to do compressions for him on his joints and a lot of big hugs. Those also give him the input he was needing for his body. I sneezed and I told him to say “bless you”. He said “bless ewe” and then did the best fake sneeze rendition I have ever heard, followed by telling himself bless you. In general, we had a pretty good day with some rough around the edges moments. I was exhausted, but he does not appreciate the excitement of during the day sleeping and he truly doesn’t appreciate the during the night sleeping either. But tonight’s one of those rare nights that he was asleep before nine o’clock. And before I could even start talking about bedtime Owen told me, “set the timer and wait till it go off for baff”. The connections were huge today and his words were abundant. I always use a timer with him so he knows when things are happening. He has started learning about the clock and can read the time but doesn’t understand what it means yet. Through sadness, I watched as my sweet baby O bowled on one of his apps. It made me miss our routine even more for him. He asked all day for school and his teacher, but every time I tried to do his work with him he got upset and ran into the other room. One day at a time I remind myself. I’ve been adapting his work to show him similar activities and that seems to be helping. I could tell he needed the feeling of security today and came to me a lot for hugs. I told him I loved him every chance I got. Through these challenging days, I’m appreciating life even more. Owen’s my ray of sunshine and my miracle that keeps me going. Never give up. Know that this is one moment in time and tomorrow is a brand new day. Smiles to all and donut daze!
RSS Feed