Here we are wintering again. Winter has rung its bell and Owen is ready for June so he can go to the outdoor pool. He dispatched the leprechauns before he went to bed, proudly proclaiming the area had been leprechauned, but here we were with no school and homebound for the foreseeable future, or tomorrow whichever is snow and ice-free.
He took not having school about as good as one might think especially since the leprechauns had been dispatched. Except for asking and repeating said future he was in a good mood with an anxious side helping of missing all his people, places, and things he wants to see. The blue church sits lonely without us driving by it numerous times but that will be saved for a snowless day in our bright future. He wanted to know what everyone was doing and how they were doing. And this was just the first hour of our day.
The memory on my son is like no other. He didn’t talk for years and then when he did start talking it still took a long time for him to make connections to words and express himself or answer questions. If you said, “Owen what’s your name” he still would not answer “Owen” or even acknowledge that he had to answer a question. He was still learning how to do all the steps and didn’t know what a question even was.
Years later he will reference something that was said to him when he was very young and answer it. And from the toddler vault came “uhh uhh uhh no sir don’t stand on that.” As soon as it came out of his mouth I could hear myself saying it repeatedly when he would stand up on the couch arm or on the windowsill. I have nerves of spaghetti from all the adventures he would get into. So now as the years have passed and he is making more and more connections each and every word he speaks is a gift and I’m thankful for his milestones.
One of the most confusing things is a “no” from Owen. It doesn’t always mean no because it means yes unless it means no when he means no and then it could be no because it wasn’t yes at the time it was no but then it could be no, maybe. He likes to answer incorrectly because he wants to see the reactions he gets. He does this with lots of things. He will say someone has blue eyes when they have brown eyes or say the wrong color of what they are wearing. He is getting better about it but it is still a process. His teacher and support team are helping him with this in many ways. I can see his growth with it.
Throughout the day I told him that his weekend was probably not going to go according to plan. He was not thrilled about winter but he was at least telling me he would do all his plans when it is “shorts degrees weather outside.” He listed off the months and got to June. He said, “Then we can go to the outdoor pool.” Our friend let me know the “movie trip” was canceled for tomorrow. He was very disappointed but said he would go in June. I told him I’m not sure if they would have one in June but we could do something else.
I got a phone call from my doctor’s office to make an appointment for me. After Owen heard me make the appointment he was very concerned. He got worried that he wasn’t going to school on the 19th when my appointment was made. I kept telling him it was my appointment not his. That was his last day of school before Christmas break and he was worried he wasn’t going to see his people again. After several hours of him getting upset I believe we finally moved on. I am not convinced it won’t be a subject that comes back up.
The day was filled with many rocky moments but there were many laughs in between. We are going to try to go to Grandma’s house very early so he can at least spend some time with her before the storm hits. Changes in routine are very stressful for him and we did a lot of our breathing exercises throughout the day.
Life didn’t teach me all the rules but love, compassion, and understanding go a long way to making it through our days. Each day I pray for guidance and strength to help Owen grow. I tell him all the time he is “my amazing” and I am thankful. I pray for good weather in the morning and for the snow to pass us by. Let love be stronger, joy be present, and compassion be never-ending. Smiles to all and donut daze!
He took not having school about as good as one might think especially since the leprechauns had been dispatched. Except for asking and repeating said future he was in a good mood with an anxious side helping of missing all his people, places, and things he wants to see. The blue church sits lonely without us driving by it numerous times but that will be saved for a snowless day in our bright future. He wanted to know what everyone was doing and how they were doing. And this was just the first hour of our day.
The memory on my son is like no other. He didn’t talk for years and then when he did start talking it still took a long time for him to make connections to words and express himself or answer questions. If you said, “Owen what’s your name” he still would not answer “Owen” or even acknowledge that he had to answer a question. He was still learning how to do all the steps and didn’t know what a question even was.
Years later he will reference something that was said to him when he was very young and answer it. And from the toddler vault came “uhh uhh uhh no sir don’t stand on that.” As soon as it came out of his mouth I could hear myself saying it repeatedly when he would stand up on the couch arm or on the windowsill. I have nerves of spaghetti from all the adventures he would get into. So now as the years have passed and he is making more and more connections each and every word he speaks is a gift and I’m thankful for his milestones.
One of the most confusing things is a “no” from Owen. It doesn’t always mean no because it means yes unless it means no when he means no and then it could be no because it wasn’t yes at the time it was no but then it could be no, maybe. He likes to answer incorrectly because he wants to see the reactions he gets. He does this with lots of things. He will say someone has blue eyes when they have brown eyes or say the wrong color of what they are wearing. He is getting better about it but it is still a process. His teacher and support team are helping him with this in many ways. I can see his growth with it.
Throughout the day I told him that his weekend was probably not going to go according to plan. He was not thrilled about winter but he was at least telling me he would do all his plans when it is “shorts degrees weather outside.” He listed off the months and got to June. He said, “Then we can go to the outdoor pool.” Our friend let me know the “movie trip” was canceled for tomorrow. He was very disappointed but said he would go in June. I told him I’m not sure if they would have one in June but we could do something else.
I got a phone call from my doctor’s office to make an appointment for me. After Owen heard me make the appointment he was very concerned. He got worried that he wasn’t going to school on the 19th when my appointment was made. I kept telling him it was my appointment not his. That was his last day of school before Christmas break and he was worried he wasn’t going to see his people again. After several hours of him getting upset I believe we finally moved on. I am not convinced it won’t be a subject that comes back up.
The day was filled with many rocky moments but there were many laughs in between. We are going to try to go to Grandma’s house very early so he can at least spend some time with her before the storm hits. Changes in routine are very stressful for him and we did a lot of our breathing exercises throughout the day.
Life didn’t teach me all the rules but love, compassion, and understanding go a long way to making it through our days. Each day I pray for guidance and strength to help Owen grow. I tell him all the time he is “my amazing” and I am thankful. I pray for good weather in the morning and for the snow to pass us by. Let love be stronger, joy be present, and compassion be never-ending. Smiles to all and donut daze!
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