Sweet Baby O - Our Autism Journey
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Mighty Friday - our autism journey

8/29/2025

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Let’s just say I can tell when we have a schedule change. When things are not what Owen thinks they should be we have an all-night party and we are the goers. He woke up around one to tell me the new advisor was coming today and that was that. He told me all of his concerns for hours. It is amazing how many things he wanted me to know about the situation and what I should do to fix it.

He was afraid our new advisor was going to be here at night so he couldn’t sleep in his bed. He was worried she would take it. He did not want to share his tent with anyone and did not want to hear her snore on the couch. Between one and when he left for school he informed me of so many things he did not want her doing and all the things that were in the wrong place for her visit. I didn’t put the blue blanket on the couch or the chair. Plus he wanted to make sure we knew what car she drives so that he could make sure when he looked out the window to tell her bye bye he would be telling the right one goodbye. The list kept going and I kept wanting to go back to sleep.

As the morning went on he was beyond hyper, ready for school, not sure how he felt about her coming, and he wanted to know where everyone was that he had ever met. I decided I would see if we could call her instead because he wanted to talk to her first before she came. So ready, set, we got ready for school, and went to wait on the porch since the bus app was not working again. He played his ukulele before we went outside to wait for the bus and music filled the air. He was the happiest boy ever to get on that bus. When things go the way he wants it is fabulous.

When I realized I had scheduled his appointment on a Friday I knew I had made a huge mistake and he would be up all night. Fridays mean coming home and staying in so he can prepare for going to grandma’s house on his Saturdays. With this realization yesterday I went ahead and rescheduled my appointment that I had today to next week because I knew I would be too tired to be able to go. Thankfully when I texted our new advisor she completely understood and we worked it out that she could call me earlier and then FaceTime with Owen so he could see her.

I know he needs everything to be very routine with a side of what he wants when he wants it. The trick is figuring out what he wants and the balance with trying new things because he has fun after he gets used to the new fun things. Having Monday as a holiday is also throwing him off. When he came home we discussed his antics and then I told him that our advisor wasn’t here but she was going to call to talk with him.

The call went well. It was just quick since I had talked to her before he got home. He played his harmonica for her. She will come visit us in a different month but I will not tell him the date until morning or when he gets off the bus. He is doing better about his schedule but there is still that fine line of what to tell him. I look at how far he has come though because when we first started with our previous advisor FaceTime or phone calls brought on huge meltdowns. He could not look at people who were talking directly to him or listen on the phone. Any phone calls I got brought both of us to tears. The sound of a phone ringing still makes me cringe praying he doesn’t have a meltdown over it now.

We talked about his big plans for Saturday, Sunday, and Monday. Grandma’s house, church, grandma’s house were the agenda items he wanted to discuss and I wanted to discuss bed. I pray he sleeps tonight. It was a four stomp to the bed night but there was no screaming and only a few extra moments of questions. Through challenges there is growth and that goes for both of us. Let tomorrow be the best day ever and know that you can make a difference in the world. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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