Owen slept until after seven. He woke up when I went to the bathroom around four and kept yelling for his tablet but I didn’t say a word. He went back to sleep, thankfully. When he did wake up he had a lot on his mind and so did I.
He was ready to go to grandma’s house while I went to my physical therapy and he made sure I knew he was ready to go. He was staying pretty calm about going to her house but I think it was because he was focused on going to the pool on Friday. I told him that we would have to wait and see. I wanted him to know that behavior is part of the reasons we may not get to do something but it also depends on who goes with us.
We met his grandma like we used to do when he was younger. He started mentioning it again and it makes him so happy to have her meet us to pick him up or drop him off. He was still focused on the pool when we met her but she had gotten a blowup pool for her house and even put a canopy over it. We knew this would probably not go the direction we wanted it to but we were hoping he would love it. We have learned our expectations are not always his expectations. And for this one on the first day of the blowup pool, it was Owen one, pool zero. Maybe day two will be his jam.
He had a great time doing what he loves to do with grandma and he is happy about spending the day again with her tomorrow. When we were coming home he started yelling, “Raise your hand Owen it’s your turn Owen turn right turn right” at the one too many stoplights we had to stop at today. He raised his hand and then wanted me to turn. It was more about us being stopped at the light than it was about the directions. He was not exactly calm on the way home but he had a lot on his mind and it mostly revolved around the pool.
Laundry is a thing again. If I put it anywhere on my bed he screams for it to go in the trash or takes it there himself. Sometimes he will put it on my table if he isn’t as agitated and sometimes he throws it all over the house. It had been a while since laundry was a thing but in the last few days, it has moved up the food chain once again. I am working with him to learn more about laundry and the older he gets I explain that if he wants to go places he needs clothes.
The night went quickly and bedtime was only met with a little discussion but he got out of bed about thirty minutes later to make sure he was going to the pool sometime this week. He also wanted to make sure he was going to grandma’s house. I tried to remind him he was and that she had a pool even though it wasn’t as big as he wanted it was still a pool.
Tomorrow I have my port installed for the chemo treatments. I know that everything will be fine and this is one step closer to the win. I talked to Owen again about having a box installed for the medicine and he told me he needed to be gentle. I pray for more understanding as the journey continues.
Even though there were a few rollercoastery moments we still had a very good day. The true test for me will be no coffee all day. I pray I sleep late tomorrow and that Owen sleeps as well. Never give up on the hope for tomorrow. Each day is an opportunity to make it the best day yet. Find your joy and make it happen. Smiles to all and donut daze!
He was ready to go to grandma’s house while I went to my physical therapy and he made sure I knew he was ready to go. He was staying pretty calm about going to her house but I think it was because he was focused on going to the pool on Friday. I told him that we would have to wait and see. I wanted him to know that behavior is part of the reasons we may not get to do something but it also depends on who goes with us.
We met his grandma like we used to do when he was younger. He started mentioning it again and it makes him so happy to have her meet us to pick him up or drop him off. He was still focused on the pool when we met her but she had gotten a blowup pool for her house and even put a canopy over it. We knew this would probably not go the direction we wanted it to but we were hoping he would love it. We have learned our expectations are not always his expectations. And for this one on the first day of the blowup pool, it was Owen one, pool zero. Maybe day two will be his jam.
He had a great time doing what he loves to do with grandma and he is happy about spending the day again with her tomorrow. When we were coming home he started yelling, “Raise your hand Owen it’s your turn Owen turn right turn right” at the one too many stoplights we had to stop at today. He raised his hand and then wanted me to turn. It was more about us being stopped at the light than it was about the directions. He was not exactly calm on the way home but he had a lot on his mind and it mostly revolved around the pool.
Laundry is a thing again. If I put it anywhere on my bed he screams for it to go in the trash or takes it there himself. Sometimes he will put it on my table if he isn’t as agitated and sometimes he throws it all over the house. It had been a while since laundry was a thing but in the last few days, it has moved up the food chain once again. I am working with him to learn more about laundry and the older he gets I explain that if he wants to go places he needs clothes.
The night went quickly and bedtime was only met with a little discussion but he got out of bed about thirty minutes later to make sure he was going to the pool sometime this week. He also wanted to make sure he was going to grandma’s house. I tried to remind him he was and that she had a pool even though it wasn’t as big as he wanted it was still a pool.
Tomorrow I have my port installed for the chemo treatments. I know that everything will be fine and this is one step closer to the win. I talked to Owen again about having a box installed for the medicine and he told me he needed to be gentle. I pray for more understanding as the journey continues.
Even though there were a few rollercoastery moments we still had a very good day. The true test for me will be no coffee all day. I pray I sleep late tomorrow and that Owen sleeps as well. Never give up on the hope for tomorrow. Each day is an opportunity to make it the best day yet. Find your joy and make it happen. Smiles to all and donut daze!
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