He was planning his days ahead and what he wanted to do. My little planner. He always has lots of plans but it’s the actual part of going through with it that is another story. Today however was not a day he wanted to plan just the days ahead.
Home was where we were going to stay and I was completely fine with that. The whole not sleeping thing is for the birds. Luckily I got more than most nights but it is never for more than a few hours at a time and then I wake up for one reason or another. He was at least mostly calm but needed constant reassurance and lots of hugs. We were joined at the hip for most of the day sitting unless he was standing next to me.
The jumping, squealing, and humming were in full force. He gets a lot of sensory input from these actions and I can tell he does more of it when he hasn’t gotten as much sleep. These actions were all in between the moments of hugs and reassurance. He is getting anxious about summer and very sad that he will not have summer school this year.
For a child who thrives in routine, it is even harder on him when one thing is changed. I try to explain to him that the only thing constant is change but how do you ever explain that concept? The last few weeks have been full of changes for Owen and even though a lot of them are things that made him happy they also caused changes that he has to process. The one thing I can’t do is keep everything consistent for him and it is the one thing I wish I could.
He wants another specific caterpillar toy that I can’t find yet since it hasn’t been made for over twenty years, a new wagon so we can go on walks, and a tricycle that has tires. He added a few other things to his list. He told me that he could celebrate his birthday every Friday. I tried to explain to him next year it won’t be on a Friday but we can celebrate it whenever he wants. He also wants his best friend to be able to do arts and crafts with him. It makes my heart so happy to hear him ask for things that he wants. For the longest time gifts, parties, and holidays were so incredibly hard on him.
Oh, how I pray we both sleep tonight. I want him to be able to go to church tomorrow and see his grandma afterward. Even though we have been preparing him for a week it is still hard for him to deal with that he didn’t get to spend his Saturday with his grandma. He asked a million times about tomorrow, and he even showed me his cards that I wrote it down on, but until it actually happens it will still be constantly on his mind.
I could tell he was exhausted because he wanted to take his bath and kept asking about nighttime before it was even lunchtime. I prayed that dinner time, bath time, and sleep all went accordingly but going to bed was not exactly smooth. He didn’t want to go to sleep and refused to get in his bed. When he finally did he fell asleep quickly but I hope it isn’t a sign to come for the night. I’m thankful that he can express more of his emotions now with words. He is making incredible progress and I can’t wait to see where it goes. Find the beauty in the little things and watch how it changes your world. Smiles to all and donut daze!
RSS Feed