Sweet Baby O - Our Autism Journey
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New Friday - our autism journey

5/31/2024

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No sleep was pretty much what I expected but it still doesn’t make it any easier when it happens. Owen woke around two, wanted his tablet, and was not taking the fact that it was the middle of the night into consideration for anything.

I tried to explain that we would not be doing anything today if he didn’t go back to sleep but that just got his screams going so off he ran with his tablet. He would occasionally run back to me and ask me when we were going bowling. The first couple of times my answer was if he didn’t go back to bed we wouldn’t be going bowling. After the third time, I gave up and embraced the fact that we would not be going bowling today. He did not embrace this.

My heart aches for my sweet baby O. It’s summer break and it breaks my heart. One week and he will go to summer school, three weeks and he’ll be done with summer school, and then in August, he’ll be moving up to middle school. These are all moments he wants to talk about constantly. I completely understand that he needs to process it, but the repetitive behaviors are hard when he keeps expecting the same answer in different ways.

He will say the opposite of what he means and then expect me to realize that he is saying the wrong thing so that I will say the right thing but catch me saying the wrong thing. It’s complicated. It’s hard. And it’s exhausting trying to figure out, what to say and when to say it.

Exhaustion spelled out the day. I could tell he was beyond exhausted because of his behaviors. He generally repeats most of his words but he was screaming about them throughout the day. The more I tried to talk to him the more he laughed or yelled and then when I would try to distract him or do something different he would start talking about seeing his grandma tomorrow.

He asked to go bowling several times throughout the day but I could hardly keep my eyes open and he was pretty exhausted himself. He is extremely ready to see his grandma tomorrow and he keeps telling me that I have an appointment so I can’t stay. That is how he processes me not being there.

He was telling me today was the 31st and that it would be June tomorrow. For someone who does not want to look at calendars, he keeps track of all the days so easily but nothing about today went smooth or quickly. I pray he sleeps tonight and tomorrow is a brand new day. His smile is what got me through the day. Find what makes you smile and share it with the world. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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