It was right at “five oh oh” when he waltzed into my room. I had already been awake for at least an hour at this point. Sleep is hard to come by for me right now. He moved on to the appointment he knew he had today and I told him we would still be able to go because it was supposed to warm up. I hoped the temperature would get up into the 40s so it would melt a lot of the ice and snow.
I am working with him on the states and capitals. We are at “Alabanya, Montogumree, Alexka, and Junoses.” I am not sure that he is as excited about this as I am but I can’t wait to see how it goes. I am trying to keep my brain as active as his and move through the repetitive stuff. He was very focused on his friend and what he will be doing in June plus the weather stuff and who was mad so states were my go-to distracter. After a few minutes, he moved on to talking about all the things he knows that get my eyebrows to raise.
He was hyper-focused on his day and behaviors like standing on things he knows he shouldn’t. We played lots of games waiting for his time to go to his appointment. He was biting and licking everything he could and then telling me “It’s funny.” When he asked me if I was mad I told him no I just wanted him to be safe. He has no concept of what can happen or fear so I try my best to explain it to him and pray a lot.
After a very long day, it was finally time to get ready for his appointment. He wanted to wear the pants that weren’t clean but decided to wear another string pair in his bins. He asked me to have his “little blue jeans” ready for Saturday. The up and down battle of which is right and what is wrong sits in my mind about trying to get him to not be stuck on one pair of jeans. I try not to overthink the process but it is exhausting keeping ahead of the clothes he wants to wear and what he wants so many others to wear. All the clean clothes come out of the laundry basket looking for what he wants even though he knows they are still in the dirty pile.
We got in the car and off we went. He was the calmest he had been all day in the car. He wasn’t having a bad day he just wanted to make sure everything else that was happening this week would still happen. I told him that the weather was showing it might snow again in the next few days and that made him question more. Is it better to wait or tell him right away is what I always struggle with.
“Jacket getting caught” as he was trying to put it in the door handle of the car. “It’s bleeding,” he continued. He couldn’t even make the jacket get stuck in the handle but he was going through the motions of having the jacket get caught. I’m not sure how this started but he tries to get “caught” in everything. The car ride was interesting to his appointment.
He did great at his appointment and was very happy to be there. When we were done he wanted me to order his pizza and we picked it up on the way home. He was very happy to have his pepperoni, sausage, black olive, and mushroom pizza. It is amazing how many things he requests on his pizza now.
He was back to talking about his days ahead and getting upset because I would not say for the tenth time in only a few minutes that I didn’t know when more snow was coming and several other things. You know you are doing your job of teaching your son how to do “little deep breaths” to calm down when he says to me “breathe” and he shows me how. He was yelling at me about staying home tomorrow and I was starting to cry. He saw my emotions and hopefully, it helps him to work through the process of these behaviors of yelling at me. I was proud of him for stopping to help me breathe which also helped him.
The rest of the night was quieter but he was still concerned that we were going to go somewhere tomorrow. I told him we could stay home. He basically put himself to bed. He kept telling me to tell his “tablet night night” when he still had thirty minutes until bedtime. Hopefully, we both sleep all night. Through challenges, I see growth in both of us. I tell him that we are a team and we both are learning. His “I love you” as I walked out of his room is what my world is all about. Never give up on the hope for tomorrow. Smiles to all and donut daze!
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