Well, the 2 am party train left again. I’m not quite sure why Owen is waking up so early but at least he somewhat let me sleep. He came to check on me a couple of times but he let me sleep until a little after four. At that point, I got up and I knew I needed coffee. He was ready to talk.
They didn’t have a bus driver this morning so I had to take him. He was handling it fine but I knew the ripple effect of moments would come later. I got him to school. He was not happy I didn’t follow the exact bus route but was super excited to see one of the aides when he got there.
He got home and he knew that he had a long weekend ahead because of the holiday. He was concerned about his grandma‘s hair and that she was changing it. He could hardly keep his eyes open. I hoped that translated to a good night. He had almost four hours until it was bedtime and he was ready to do his nightly routine.
He was once again full of lots of information. He decided my hair looks like my mom’s hair so I guess that’s progress. He was concerned that the bus was going to shock him even though he wasn’t on it anymore. He also wanted to go see his friend and then said, “If you could you would” because I always tell him if I could make it happen I would so now I say “If I could I would.”
“Screaming you are screaming,” he said about himself. He continued telling me that he wanted me to find the “bridge flags” on an app that he repeatedly tries to use but it takes forever to load. I try to get him to use Google Earth but he loves to ask me about the other app since I have told him so many times that it takes forever to load. He watched the little bubble continuously spin for many minutes and kept asking me to find the exact spot he was on. He finally closed the app and laughed and laughed and laughed while he opened the other one so that we could quickly find everything.
He moved on to tell me that I disappointed him since I didn’t tell him I was going to take him to school earlier that morning. I told him I didn’t know until exactly when I told him. He then told me to not disappoint him on Tuesday. I tried to explain to him that I wouldn’t know about the bus until Tuesday, but it’s still such a process for him to understand.
“When the medicine is done,” Owen said again referencing our summer and wanting to go to the pool. I told him it’s hard for me to take him to the pool while I’m doing my infusions. I know he can’t process everything that I’m going through so I try to explain it to him in terms that he will understand. Even though these infusions are not nearly as hard as the chemo infusions were, they still upset my stomach and there are a lot of days that I’m just exhausted from them. Attempting to go to the pool is hard for me and it also breaks my heart because I know he wants to go. Hopefully this summer we will be able to go more with our friends.
When I talked to one of my doctors the other day, they said this is one of the longest cancers to go through because of all the treatments that you do. Hopefully, by the end of October, I will have the infusions completed. There will be numerous follow-up appointments with all of my doctors, but hopefully, the treatments themselves will be done.
As bedtime approached, he told me he was going to wake up at two so he could scream. I truly was hoping that wasn’t a prediction and he would sleep through the night. I asked him if he didn’t want to go to his grandma’s on Saturday and he said he did. I told him if he screamed at 2 o’clock in the morning and I couldn’t stay asleep he wouldn’t be able to go to his grandma‘s. I pray that he sleeps tonight. And I pray that I sleep tonight. He wanted lots of hugs and kisses before bedtime and he fell asleep very quickly. Follow your heart and make your dreams come true. Smiles to all and donut daze!
They didn’t have a bus driver this morning so I had to take him. He was handling it fine but I knew the ripple effect of moments would come later. I got him to school. He was not happy I didn’t follow the exact bus route but was super excited to see one of the aides when he got there.
He got home and he knew that he had a long weekend ahead because of the holiday. He was concerned about his grandma‘s hair and that she was changing it. He could hardly keep his eyes open. I hoped that translated to a good night. He had almost four hours until it was bedtime and he was ready to do his nightly routine.
He was once again full of lots of information. He decided my hair looks like my mom’s hair so I guess that’s progress. He was concerned that the bus was going to shock him even though he wasn’t on it anymore. He also wanted to go see his friend and then said, “If you could you would” because I always tell him if I could make it happen I would so now I say “If I could I would.”
“Screaming you are screaming,” he said about himself. He continued telling me that he wanted me to find the “bridge flags” on an app that he repeatedly tries to use but it takes forever to load. I try to get him to use Google Earth but he loves to ask me about the other app since I have told him so many times that it takes forever to load. He watched the little bubble continuously spin for many minutes and kept asking me to find the exact spot he was on. He finally closed the app and laughed and laughed and laughed while he opened the other one so that we could quickly find everything.
He moved on to tell me that I disappointed him since I didn’t tell him I was going to take him to school earlier that morning. I told him I didn’t know until exactly when I told him. He then told me to not disappoint him on Tuesday. I tried to explain to him that I wouldn’t know about the bus until Tuesday, but it’s still such a process for him to understand.
“When the medicine is done,” Owen said again referencing our summer and wanting to go to the pool. I told him it’s hard for me to take him to the pool while I’m doing my infusions. I know he can’t process everything that I’m going through so I try to explain it to him in terms that he will understand. Even though these infusions are not nearly as hard as the chemo infusions were, they still upset my stomach and there are a lot of days that I’m just exhausted from them. Attempting to go to the pool is hard for me and it also breaks my heart because I know he wants to go. Hopefully this summer we will be able to go more with our friends.
When I talked to one of my doctors the other day, they said this is one of the longest cancers to go through because of all the treatments that you do. Hopefully, by the end of October, I will have the infusions completed. There will be numerous follow-up appointments with all of my doctors, but hopefully, the treatments themselves will be done.
As bedtime approached, he told me he was going to wake up at two so he could scream. I truly was hoping that wasn’t a prediction and he would sleep through the night. I asked him if he didn’t want to go to his grandma’s on Saturday and he said he did. I told him if he screamed at 2 o’clock in the morning and I couldn’t stay asleep he wouldn’t be able to go to his grandma‘s. I pray that he sleeps tonight. And I pray that I sleep tonight. He wanted lots of hugs and kisses before bedtime and he fell asleep very quickly. Follow your heart and make your dreams come true. Smiles to all and donut daze!
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