The good news is he didn’t know he was getting to have a week of fun and some extra therapy mixed in. I was supposed to have an appointment this morning so we met my mom so she could watch Owen for a few hours. He knew this was happening so that probably didn’t help the waking up early. He didn’t know however that he was getting to see some of his friends today. He was so excited to see his best friend there and I was extremely happy for him. He knows that he will get to see his friends the rest of the week so hopefully he will sleep better.
He had a great time at his therapy and talked about it all afternoon before we went to his vision therapy appointment. I asked him what the best part was and he said, “All of it.” He said he was excited to go on a bear hunt with his best friend. I was loving all the information. I am so glad he can express how much fun he had and listening to him talk about it is amazing.
When we came home he wanted to show me all the things he knows I don’t want to see. Rinse, repeat. I’m back to telling him to show me everything and he quickly turns it off. I pray this is the time this strategy sticks. It is amazing how calculating his brain is and can work through all of this. Plus, he will put something on a shelf for a month or years and bring it back into the mix. Like drawers being open is back to causing him to have meltdowns. It’s truly wild how things come back up that I thought we worked through and were done with.
We got ready to leave for his vision therapy appointment and he was talking about all the day's events. As we were getting ready to leave the rains came and I thought how thankful I am that rain no longer causes meltdowns just to hear even one drop of rain. I pray this is something that never comes back off the shelf. I can’t even begin to remember how many appointments we had to cancel or events we couldn’t go to because he would be crying in my arms from the rain.
He did INCREDIBLE At his vision therapy! I can’t remember the last time he did remotely this good. He was in such a great mood! On the way home I was telling him how proud I was of him. I said you know you did “fan” and before I could finish he said, “tastic.” He did three new exercises and no screaming. He hugged his doctor many times and it was like he was back to his old self again. It’s amazing how quickly it all changes. He had minor things like biting my hair, talking about gum, and tearing books but nothing like the last few months. So thankful!
When it was bedtime he said that he got to see his friend “four more times three more times two more times one more time until Friday.” I’m so thankful he is happy. It feels like it is already a blessed week. On the hard, hard days these are the days I file in my memory banks to pull out and remember the incredible days. He can’t wait to see his friends tomorrow and I pray it helps him sleep tonight. Create those memories that will always make you smile and have a great day. Smiles to all and donut daze!
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