I’m thankful that I haven’t gotten very sick from my fourth infusion. I prayed this one wouldn’t be bad and so far exhaustion and food not tasting right are the only things that are affecting me. I woke up several times to go to the bathroom last night but went right back to sleep and pretty much slept until a very cheerful Owen came to greet me.
He slept until after five. I’ll take it. He was full of his missions for the day and months ahead. He couldn’t wait to get to church to see his beloved people. He was also quite focused on what was happening in December. He is very concerned about missing so much school and is confused that he will be the only one not there. He wants to make sure he will see his teacher and aide in January. I wish I could convince him that this happens every year and that he will see them after the break. We are planning a lot of activities for him and I hope that helps him get through his days.
He ate his first and second breakfast quickly and wanted more. I love it when the dude has a big appetite. He is growing again and I know he will be bigger than me soon. I try to work with him on his eating habits. He likes to pick things apart instead of picking something up to take a bite from it. I’m not quite sure how to get him to stop this habit. It is something we have been working on with him for years with many specialists. He is a very slow eater which is good but it also doesn’t help with trying to get him to eat other ways. I’m thankful that he uses a fork and spoon more than he ever has though. I know it will all come together for him as he continues to mature.
We got ready for church and he was so happy. He talked about seeing his friends and what they would do. His friend took him down to his classroom while I went into the auditorium. The service was great and exactly what my heart needed. When we left church he was so exact on telling me the details of the conversations he heard and was a part of. It thrills me that he can hold onto these moments and then share the details.
We got our food and headed home. There were so many sounds coming from all over when we got home that it was very upsetting to him. There was a vacuum cleaner that was going off in the distance with someone vacuuming out their car. He was almost in tears with this but then got even more upset when he saw the lady that was going into her house at the wrong time and had a dress on. The rules of his world almost are daunting some days. Which ones do I focus on to get him past those moments? Thankfully I kept telling him to come inside and he was able to follow me. Once we got inside he was much calmer and he had a great afternoon besides still focusing on the holiday in December.
He talked a lot about yoga, December, and music. He told me he wants Spookley the Square Pumpkin in Portuguese on Netflix, a Spanish robot BeatBo in a box delivered by the mailman, and he dried his hair with his towel. We were busy. I’m thankful for the happy moments and that he had a pretty calm evening. He was upset that his favorite tablet wouldn’t charge fast enough but he decided to play music instead. Bath time led to bedtime and he was extremely ready for his busy day tomorrow. I loved his communication with me today and he is learning to express his wants and needs. My favorite part was when it was almost bedtime and he crawled up next to me to give me a big hug. These are the moments I will always cherish. Each day is a gift and I look forward to watching his incredible progress. Be bold, be brave, be beautiful, be you. Smiles to all and donut daze!
He slept until after five. I’ll take it. He was full of his missions for the day and months ahead. He couldn’t wait to get to church to see his beloved people. He was also quite focused on what was happening in December. He is very concerned about missing so much school and is confused that he will be the only one not there. He wants to make sure he will see his teacher and aide in January. I wish I could convince him that this happens every year and that he will see them after the break. We are planning a lot of activities for him and I hope that helps him get through his days.
He ate his first and second breakfast quickly and wanted more. I love it when the dude has a big appetite. He is growing again and I know he will be bigger than me soon. I try to work with him on his eating habits. He likes to pick things apart instead of picking something up to take a bite from it. I’m not quite sure how to get him to stop this habit. It is something we have been working on with him for years with many specialists. He is a very slow eater which is good but it also doesn’t help with trying to get him to eat other ways. I’m thankful that he uses a fork and spoon more than he ever has though. I know it will all come together for him as he continues to mature.
We got ready for church and he was so happy. He talked about seeing his friends and what they would do. His friend took him down to his classroom while I went into the auditorium. The service was great and exactly what my heart needed. When we left church he was so exact on telling me the details of the conversations he heard and was a part of. It thrills me that he can hold onto these moments and then share the details.
We got our food and headed home. There were so many sounds coming from all over when we got home that it was very upsetting to him. There was a vacuum cleaner that was going off in the distance with someone vacuuming out their car. He was almost in tears with this but then got even more upset when he saw the lady that was going into her house at the wrong time and had a dress on. The rules of his world almost are daunting some days. Which ones do I focus on to get him past those moments? Thankfully I kept telling him to come inside and he was able to follow me. Once we got inside he was much calmer and he had a great afternoon besides still focusing on the holiday in December.
He talked a lot about yoga, December, and music. He told me he wants Spookley the Square Pumpkin in Portuguese on Netflix, a Spanish robot BeatBo in a box delivered by the mailman, and he dried his hair with his towel. We were busy. I’m thankful for the happy moments and that he had a pretty calm evening. He was upset that his favorite tablet wouldn’t charge fast enough but he decided to play music instead. Bath time led to bedtime and he was extremely ready for his busy day tomorrow. I loved his communication with me today and he is learning to express his wants and needs. My favorite part was when it was almost bedtime and he crawled up next to me to give me a big hug. These are the moments I will always cherish. Each day is a gift and I look forward to watching his incredible progress. Be bold, be brave, be beautiful, be you. Smiles to all and donut daze!
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