Calm was not a word for the day. He was very much ready to get on that bus and get his day started. It took him a couple of times, but he listened and we got ready for the bus. It took him a couple of times to ask questions before he got on the bus.
When he got home it was like night and day from yesterday to today. He is a little more on edge but I am cutting him off before he spirals. I told him if he wanted to scream he was just going to have to scream. He started in on middle school and elementary school. I said oh that’s right you are going back to elementary school and he said no no no. I said why he wanted me to say the wrong thing if he already knew I was saying the right thing. I know he is having a hard time, processing it all, but I don’t know why he wants me to say the wrong things.
He then talked about therapy. They had called to tell me one of his therapists isn’t going to be there tomorrow because she is sick. He then told me to “focus on the giraffe” and I’m not sure what that meant. When he got home, he was originally mad because I had my camo pants on and not a dress. I talked to him about what he was wearing and made sure he knew he was wearing exactly what he asked to wear and that I was wearing exactly what I wanted to wear.
You never know when something in your mouth will be up for debate. He stands in front of me like a little baby bird with his mouth open saying “ahh” trying to get me to open my mouth. If I don’t the screams may happen, if I do the screams may happen, or I might convince him to walk away. Distractions sometimes work and sometimes it is the fuel to the fire to get him ramped up.
His teacher sent me a message saying Owen was having a hard time with the word “have.” She said he is getting all the other vocabulary words and what they mean but not that one. I put the word “have” on the refrigerator with his letters that are magnets. We worked on the word throughout the night. Make a sentence with the word have, I said. “I have an answer,” he replied.
Bathtime and bedtime were both interesting. He talked about tearing his teacher’s paper repeatedly and then moved on to having “dult teeth.” At first, I didn’t know what he was saying and then I realized he was trying to say “adult teeth.” I always tell him he is not losing any more teeth.
He got out of bed more times than I can count, wanting to talk about tomorrow and seeing his teacher in class. I told him he needed to go to bed to be able to get up in the morning and go see them. I pray he sleeps all night and I pray I get rest as well. Tomorrow is day two of my radiation. I try to focus on the good stuff. Today was a hard day for Owen to try and focus when he was home and all he wanted to do was scream and repeat things. I pray for a better day for him tomorrow. Be inspired by the world and be the change you want to see. Smiles to all and donut daze!