Twitching of the eyes is where it’s at today for both of us. My eyes can’t even eye today. Luckily, I slept for about three hours when Owen went to bed. From there, we have been up all night. His entrance into my room was grand and loud. “Good morning sunshine how are you doing today I’m fine tablet tablet,” he said. Me, “It’s not five o’clock in the morning you need to go back to bed.” He went for all of about two point two seconds. From there loud talking, screaming, and nose to nose staring was what it was all about.
One concern was if I was happy, next was when he was going to have “blue pancakes” again, then he wanted to know about clothes and if people would be mad if he hit them, and finally when we could get ready for therapy. I say finally but numerous other concerns came to light after we got up like what our friend was eating in Florida and of course, if his best friend would have a chair next to him in class. Pancakes and bowling again plus the pool are also the talk of the town.
I called and canceled his therapy. I didn’t see it going over well today. He was laughing at everything and I certainly wasn’t going to drive the way I was feeling. The screaming stopped at some point in the morning and he wasn’t talking in the loud voice but I didn’t see him handling everything well and especially if one of his therapists was going to be in new clothes even though he knew to expect it.
We listened to the crying babies who steal the pacifier from each other for I don’t know how long. He plays it in slow motion for sometimes thirty minutes or longer at a time, replaying the same crying section over and over. I was just going through the motions trying to stay awake and coffee was certainly my friend, kinda. It still somewhat messes with my stomach after all my infusions.
He was calm by the afternoon but mostly because he was trying to keep himself awake. Food was also a big topic and what we were going to do tomorrow. I told him we will have to wait and see. He wanted to know if our friend was eating another “rhubarb sandwich.” He called it that instead of a Reuben. This was a running question throughout the day.
He told me that he wanted to know if he would have to walk in the road on August 15th. He always wonders if he has to cross the street for the bus. He is counting the days down until he goes back to school. It is three weeks away. He’s made so much progress this summer so I know that it will be an incredible year ahead for him.
He sat beside me extremely tired but we still had hours to go before it was bedtime. I was not letting him fall asleep though because I could only imagine how the night would go then. He told me “Owen too upset no therapy.” I told him that we have to work on him not yelling at me and at least letting me sleep so we can do different activities. I don’t know how else to relate it to him. I pray we sleep tonight so he can go to the pool tomorrow. Through tired eyes I pray tonight is calmer at bedtime as well. Each day I try to focus on the progress. We all got something but don’t let it stop you from being amazing. You are a gift to the world. Smiles to all and donut daze!
One concern was if I was happy, next was when he was going to have “blue pancakes” again, then he wanted to know about clothes and if people would be mad if he hit them, and finally when we could get ready for therapy. I say finally but numerous other concerns came to light after we got up like what our friend was eating in Florida and of course, if his best friend would have a chair next to him in class. Pancakes and bowling again plus the pool are also the talk of the town.
I called and canceled his therapy. I didn’t see it going over well today. He was laughing at everything and I certainly wasn’t going to drive the way I was feeling. The screaming stopped at some point in the morning and he wasn’t talking in the loud voice but I didn’t see him handling everything well and especially if one of his therapists was going to be in new clothes even though he knew to expect it.
We listened to the crying babies who steal the pacifier from each other for I don’t know how long. He plays it in slow motion for sometimes thirty minutes or longer at a time, replaying the same crying section over and over. I was just going through the motions trying to stay awake and coffee was certainly my friend, kinda. It still somewhat messes with my stomach after all my infusions.
He was calm by the afternoon but mostly because he was trying to keep himself awake. Food was also a big topic and what we were going to do tomorrow. I told him we will have to wait and see. He wanted to know if our friend was eating another “rhubarb sandwich.” He called it that instead of a Reuben. This was a running question throughout the day.
He told me that he wanted to know if he would have to walk in the road on August 15th. He always wonders if he has to cross the street for the bus. He is counting the days down until he goes back to school. It is three weeks away. He’s made so much progress this summer so I know that it will be an incredible year ahead for him.
He sat beside me extremely tired but we still had hours to go before it was bedtime. I was not letting him fall asleep though because I could only imagine how the night would go then. He told me “Owen too upset no therapy.” I told him that we have to work on him not yelling at me and at least letting me sleep so we can do different activities. I don’t know how else to relate it to him. I pray we sleep tonight so he can go to the pool tomorrow. Through tired eyes I pray tonight is calmer at bedtime as well. Each day I try to focus on the progress. We all got something but don’t let it stop you from being amazing. You are a gift to the world. Smiles to all and donut daze!
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