Well, the sleep train did not happen for Owen but he was very happy about it. He was ready to go to his grandma’s house and that was something he wanted to share with me. I didn’t sleep much but slept in between the wake-up times.
He is not happy about missing school on Monday. It helps when I tell him no one else will be there either but he still wants to go. It’s hard for him to grasp that he is missing out on something he wants to do especially if he thinks someone is going to be there without him.
When he has appointments in the morning and I have to take him to school it’s harder for him to comprehend than when I pick him up from school to go to an appointment. I want him to learn that change happens and how we have to adapt to it. It’s one of those life skills I try to work with him on. He still wants to go through all the steps with me but I see that he is connecting to it more and that’s great progress.
I took him to spend the day with his grandma and I came home and slept. So far this infusion has been going well. I’m tired and my stomach has been a little upset but much better than even the last one at this point. I’m thankful that up next is the surgery in December and moving forward. I have several tests and other steps before my surgery but they should all go pretty quickly.
I met up with my mom and got Owen from her. They had gone on a little adventure. We then went on another little adventure because there were people everywhere at the turnoff for our house. I didn’t want the cars to upset him since he was having such a great day. He loves going to look at some of his favorite places like seeing an air conditioning unit on the side of this building and a yellow house that he thinks is cool. It always amazes me what he wants to see. He was very calm though and he said, “I miss my grandma” during the ride. It is the first time that I can ever remember him saying it in a full sentence. It felt like so much progress.
He is already plotting his days ahead and wants to know who he will see tomorrow. Even though he woke up extremely early he handled the day really well. I pray he sleeps tonight and we can go to church tomorrow. I told him that he has to go back to sleep if he wakes up tonight and no yelling.
He started talking about people’s clothes and I reminded him that there were so many other things we could talk about. He listed off about fifteen things and said something about them all. It felt like such a victory. Each day is a gift, focus on the good stuff. I’m thankful for the progress we both made today. Here’s to letting yesterday go and striving for an incredible future. You are amazing and can change the world with your smile. Smiles to all and donut daze!
He is not happy about missing school on Monday. It helps when I tell him no one else will be there either but he still wants to go. It’s hard for him to grasp that he is missing out on something he wants to do especially if he thinks someone is going to be there without him.
When he has appointments in the morning and I have to take him to school it’s harder for him to comprehend than when I pick him up from school to go to an appointment. I want him to learn that change happens and how we have to adapt to it. It’s one of those life skills I try to work with him on. He still wants to go through all the steps with me but I see that he is connecting to it more and that’s great progress.
I took him to spend the day with his grandma and I came home and slept. So far this infusion has been going well. I’m tired and my stomach has been a little upset but much better than even the last one at this point. I’m thankful that up next is the surgery in December and moving forward. I have several tests and other steps before my surgery but they should all go pretty quickly.
I met up with my mom and got Owen from her. They had gone on a little adventure. We then went on another little adventure because there were people everywhere at the turnoff for our house. I didn’t want the cars to upset him since he was having such a great day. He loves going to look at some of his favorite places like seeing an air conditioning unit on the side of this building and a yellow house that he thinks is cool. It always amazes me what he wants to see. He was very calm though and he said, “I miss my grandma” during the ride. It is the first time that I can ever remember him saying it in a full sentence. It felt like so much progress.
He is already plotting his days ahead and wants to know who he will see tomorrow. Even though he woke up extremely early he handled the day really well. I pray he sleeps tonight and we can go to church tomorrow. I told him that he has to go back to sleep if he wakes up tonight and no yelling.
He started talking about people’s clothes and I reminded him that there were so many other things we could talk about. He listed off about fifteen things and said something about them all. It felt like such a victory. Each day is a gift, focus on the good stuff. I’m thankful for the progress we both made today. Here’s to letting yesterday go and striving for an incredible future. You are amazing and can change the world with your smile. Smiles to all and donut daze!
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